Forum Discussion
Greengirl
6 years agoMember
To remove ovaries or not ??
Hi I got diagnosed with BC late last year aged 47 .Had lumpectomy in January this year followed by radiotherapy.Now on Tamoxifen.Had a Mirena in place for heavy periods which I had removed at the oncologists recommendation.Fast forward 5 months on Tamoxifen and having periods from hell! Saw gynaecologist yesterday. I need to make a choice between endometrial ablation or full hysterectomy with removal ovaries. My grandmother died of ovarian cancer at 54 years. I’m waiting on genetic testing result but as I understand even if negative it’s no guarantee as we still have a lot to learn about genes. Mum had full hysterectomy about my age ( no cancer found) but was able to take HRT for 7 years.So I’m really trying to weigh up the risks and benefits . Any advice/ experience would be appreciated I have changed my decision a few times already Thanks in advance x -
28 Replies
- GreengirlMember@Lisa1407 @Zoffiel thanks so much for your support and best wishes x
- ZoffielMemberMaking the decision is more than half the struggle @Greengirl, particularly if you have got to weigh up a heap of pros and cons. Good luck with your op and well done for taking control of the things you can. Mxx
- Lisa1407MemberI think that is a good decision @Greengirl. Good luck with your surgery. xx
- GreengirlMember@Lisa1407 Thankyou so much Lisa1407 for your input. Sorry to hear about your diagnosis. Just got my result back last week. BRCA negative ..... but after talking to the genetic counsellor she said given my grandmothers ovarian cancer and my breast cancer both at young ages there could be a genetic fault that we don't yet know about.
So I'm going to bite the bullet and go ahead with the hysterectomy and oopherectomy.
Thankyou for the reality check! Best wishes to you and your family x - Lisa1407MemberAlthough I was in a different position to you @Greengirl, having being diagnosed with de novo metastatic breast cancer, the first thing I had done was have an oophorectomy (at age 50). I was BRACA negative. The procedure was a really simple one even though it takes about 3 hours with keyhole surgery. I had mine done mid afternoon and the next morning was walking about and discharged from hospital. Of course it threw me into menopause straight away, but only had hot flushes for a few months and then it was over. I am not sure if everyone is that lucky. But my advice would be if you don't need your ovaries, get them removed because of the risk of ovarian cancer and if your breast cancer progresses. It is a 'brainer' for me. Same goes for having the hysterectomy, although I know that is a much bigger operation with recovery time needed. I have friends (w/out breast cancer) who have had ablation - it doesn't always work! Good luck with your decision! xx
- GreengirlMember@Blessed72 Sorry for the late reply.Thankyou so much for your support and sharing your personal experience.It means more than you realise . Best wishes with everything to you also 💖
- Blessed72Member@Greengirl what a toughie! I had a hysterectomy in 2017, due to fibroids - ovaries preserved. I was pre menopausal at the time. Now I am 48 and at the start of full blown menopause... I get a lot of hot flushes which end in me breaking in a sweat...not nice at all.
Endometrial ablation sounds a fairly easy procedure in comparison to hysterectomy (mine was rather complex, 3 hours in surgery and recovery was not an easy road).
I guess for you, the history of ovarian cancer throws a spanner in the works.
It really is a matter of wighing up the risks and benefits. sorry I am not really helping🙈.
Good luck with everything xo - eightdaysMemberAll the best @Greengirl. Will be thinking of you.Eightdays xx
- GreengirlMemberSorry for the late reply @eightdays.Long story but had some technical issues so haven’t been able to log onto the forum until now.
Go you good thing! with the running. So glad you are doing well and thanks for your reply. Good luck with the trail race.You will smash it !
I’m going to have the ablation next month
I will wait for the genetic testing and discuss with the oncologist before I make a decision on the oophorectomyHappy Running
Take Care
Greengirl xx - eightdaysMemberHi @Greengirl, thanks for asking after me. It sounds like you have some difficult decisions ahead of you. Im sorry you’ve had difficulty with periods while on tamoxifen. That sounds really tough. I am sure you will come to the right decision in time - good on you for reaching out and asking others.I’m doing well thanks, haven’t posted on here for a while. My oncologist felt I did not need to go for ovary removal just now so I am just living life back to normal on tamoxifen. Hope to have some genetic counselling later this year to further inform me. So far no major side effects for me on tamoxifen thankfully. All went well with radiation. I’m feeling good, running every second day and enjoying feeling fit! Have signed up to a stupid 13km trail race next month - what was I thinking?
best wishes
Eightdays x