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SueRi's avatar
SueRi
Member
15 years ago

time flies

Wow how fast time has gone by. It has been quite some time since I have written anything. Having Herceptin infusion every three weeks seems to make time fly so much faster as you no sooner recover from one infusion and then its time for another and another month has gone.

Most things are still the same as before still aching and the cold weather isn't kind on the joints! My tumor markers went up and up for awhile so had another ct scan but all is ok thankfully. Everything else is stable and the onc. is happy with that.

Sue

 

 

2 Replies

  • SueRi's avatar
    SueRi
    Member
    15 years ago

    Hi Helen & June

    I live in a small village called Bute which is about 40km from Kadina and 180km from Adelaide, which with all the travel we do for oncologist and scans etc at the Lyell McEwin I wouldn't move closer as its so peaceful and stress free here.

    Helen with Herceptin I have few SE's main one is tiredness and since starting Herceptin I now suffer motion sickness plus even tho' I don't have chemo I do suffer chemo brain I am so forgetful and its very frustrating. The joint aches and pains I get I am told is due to the Femara not Herceptin. I had a full hysterectomy a few years previous to dx and did take HRT  but now I can't due to being ER+ and the hot flushes can be pretty bad  I am not looking forward to summer as I no longer can deal with being hot as I tend to go dizzy and nauseous its like having heat stroke.

    June I know what you mean about the clothing as I have a powerport in and have to make sure I wear tops that allow easy access to it and when I go for all the scans which luckily they try and arrange all in one day due to the distance I travel I make sure I don't wear metal so I don't have to strip off all the time.

    Hopefully the joint aches will ease with time and I have found walking does help but if I over do it the pain gets so bad my knees throb at night.

    All the best with treatments and managing the SE's

    Sue

  • Collinbee's avatar
    Collinbee
    Member
    15 years ago

    I had my 12th Herceptin last week so on the count down with 5 more to go every 3 weeks. As its 12 months since my diagnosis I am due to have a mannogram and US on Wednesday so will be pleased to get that over also to have my 3monthly heart scan on the same day soa busy day. As i'm wearing a wig I have to wear a blouse and cardigan to go to the hospital to avoid pulling clothes over my head and displacing the wig. The problems we have!!

    My joints are the same. Not sure if its the Femara or the Herceptin that causes the aches.

    I go to an exercise group for ladies who have had BC and really enjoy that

    The group meets on WEds. so will miss out this week.

    All the best

    June