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HIT's avatar
HIT
Member
10 years ago

Thyroid probs after treatment

Hello ladies  So finished treatment ages ago (chemo June 14, hercepton March 15) and still so many continuing side effects.  So glad that I seem to be in the minority.  After a disappointing visit to onc, I finally got to local doc so he could do blood tests to make sure that there was no medical reason for feeling so crap.  Diagnosed with hypothyroidism after treatment, and this time the thyroid came back with high Free T3 and low Free T4.  My doc said to come back to retest in three months, umm and ahhd on whether to change pill dosage and gave me the lecture again on how tough chemo can be and it may take time to recover ...  like I didn't know that!!!   (Honestly, I've only been down there 4 times since treatment) He gave me a copy of the pathology report - and when I read it at home its says - Results consistent with T3 toxicosis.  Suggest TRAB antibodies and follow up 6 weeks after..... What the hell.  Is this normal?  

Feeling - I don't know - is the tiredness getting worse - I don't know - nothing is stable -WHY.  Feel they are all running the other way.  GOOD NEWS - my blood sugars are LOW - WHY ---- I have stopped having my fruit / green powder etc smoothies!!!  Real healthy stop eating fruit to lower blood sugar.

Okay, vented now - will go back in 6 weeks (stuff 3 mths) if no improvement.

Pam

4 Replies

  • HIT's avatar
    HIT
    Member
    10 years ago

    Thanks Tracy   I regret going for tests so soon after my BC treatment.  I didn't have thyroid troubles before, and the symptoms were improving greatly on there own before I got tested (would of hated to see my count at the beginning).  Maryrose says go with your gut, and right at the diog my gut said No Wrong!!  Sometimes I feel like stopping the tablets and seeing what happens, but currently I am too gutless.  I couldn't get more tired surely???  I don't know my own body anymore, but soon I will learn to know the new me.  And thankyou - its been 15mths on thyroid tabs so maybe things are settling now.

    Pam

  • Tracy62's avatar
    Tracy62
    Member
    10 years ago

    Hi Pam,

    I actually had an aggressive thyroid cancer a few years before I got breast cancer. With the thyroid, I ended up with multiple surgeries and a high dose and wide field radiation before finally being told I was in remission (recently hit 5 year mark for this). In my case, the breast cancer was easier in that I opted for a mastectomy and have been all clear so far (touch wood) - almost 2 years. The original specialist I saw for my thyroid is the same one I went to see about the breast cancer. He is an endocrine surgeon (I also still see the oncologist and the surgeon he passed me on to who was brilliant when it was found what type I had) and told me every time that the body takes time to recover and when thyroid issues (and that includes when taking medications related to having no thyroid) are involved this can take up to a year for things to be finally adjust. This same thing was told to me by the oncologist and the other surgeon. I know that our cases may be different but I thought I would just let you know what I had been told - hope it helps at least in some way.

    Tracy xxx

  • HIT's avatar
    HIT
    Member
    10 years ago

    Thanks Maryrose  My onc has put a pile of bloodwork for the next appt, but its not for 5 mths.  He seemed happy to leave it at the local GP for now.  Its just me that is not confident in them at the moment.  But I will hope for an improvement, but if there is none go back in 6 weeks and be tough....  glad you mentioned the chemobrain - that is another thing that is hanging on, but at the moment it is the least of the side effects.  I used to go by my gut, but I'm afraid its gone to sleep with the rest of me  ha ha.  

    Pam

  • maryroset1's avatar
    maryroset1
    Member
    10 years ago

    Hey Pam. It does take a long time to get over things. Was tired for a long time after treatment finished and still have my moments and i finished trestment nearly 12 months ago. Chemo brain still very prevalent and finding it embarrassing at times. I could be in the middle of a conversation with someone and my brain goes blank. My oncologist did a whole heap of blood work a few months ago because i told her i felt like crap and she wanted to rule out things  I would bring it up again next appointment you have with the oncologist. I wouldnt be waiting months. I always use my gut feeling as a guide to things and dont be afraid to hassle your doctors. Thats what we pay them for!!

    Hope you start feeling better soon.????

    Maryrose