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sue1957's avatar
sue1957
Member
11 years ago

the waiting game over have results

well after having surgery on the 11th july  to remove a lump and 2 nodes I got my results back yesterday and they were not as expected, I am now booked in for 2nd surgery on the 4th aug to have a mastectomyof the right breast and removal of nodes as well, as the cancer as spread to god knows where.

results came back as ER positive, PR positive, HER2 positive, 1 of 2 nodes tested positive, grade 3 invasive carcinoma nst  and I had 2 carcinomas not 1 as scan had found.

Am hoping they dont find it any where else when I have CT scan before op.

They are also going to give me a port for chemo treatment too.

I was wondering if any-one has had simular results and what treatment they had for it. weather you worked through treatment or not, how long you where laid up for after each treatment, any info would be good at this stage so I have some idea on what or could happen.

thanks in advance for advice.

9 Replies

  • Yes, I also had endo which i did find helped.  I stopped it about the 10th day. 

    Am just taking panadol now a couple of times a day. 

    Had to go to the Lymphodema clinic today and they think i may have a couple of issues with cording.  Have been given more exercises to do and i will.

    Take care

    Michele X

  • hi lizlay82, i will definitely have to remember to ask for them. they are puting my portacath in at same time of next op

    sue

  • hi michele.

    thank you for your info it is very helpfully. I am 13 days post op of 1st surgery to remove lump and nodes. now have 11 days to go till 2nd op. first op sounded alot like yours and when well i am still a little sore under arm and across chest. yesterday was the best my body had felt after op and get better each day. but now on the 4th we go back to square 1 and start all over again. I woke up after my 1st op ok but with a hangover feeling but once i was up and walking around i was a lot better. because they cut a muscle in my chest to get a node the only med that fix the pain was endone. which ease it but you soon remember it is there when you do something.  did you have this or something stronger. i was lucking to get my drain out the next day and home on day 2. but will def be coming home with drain after next op. hubby is having time off work to help for a few days get me up and down.

    I am attending PA hospital in brisbane the staff there are all very nice but defintly be good to be home as you never get enough sleep with the nurses always checking you. 

    my nurse has order me a my care kit which comes with a special made bra with some type of filling has clips at the front and back. but i did but some bras (like the ah bra) which are good because i can stand into them and pull up.

    you are right all i want is these gremlins out of me.  So hoping round 2 op will fix that.

    I am getting a portacath put in at the same time of 2nd op. which I dont mind because then they don't have to go fishing for my veins evey time.

    thanks agian for you info and best of luck with your recovery. and will definitely keep in touch.

    sue

     

  • Oo I forgot to add I also have a port a cath aswell best thing ever also ask for numbing patch
  • Oo I forgot to add I also have a port a cath aswell best thing ever also ask for numbing patch
  • It seems like quite a few of us have got a shock when we got our results in the last month. 

    I had a mastectomy of the RB 12 days ago and can fill you in on how it went and how i am now, even though i realise we are all different.

    I had to be at the Hospital at 6.30am and was seen to by a nurse who took my temp. blood pressure gave me a gown, put compression socks on. I then had to see the Anaesthetist who explained what he was going to do and how long the op would probably take.

    I was lucky enough to be the first for that day. 

    At 8.00am i was wheeled into a little room given a needle by the an and that was it. I didn't even get to see the operating room, although i do remember my oncology surgeon gave me a little way through the window.

    The op went for approx 2hrs and i was in a lot of pain in recovery and they eventually found what worked which was great!

    I got up to my room from recovery where my family was waiting for me about 3.00 in the afternoon.

    I was lucky as i had no side effects from the anaesetic and was able to have a sandwich and cup of tea for dinner

    The pain drugs were wonderful and they kept giving them as was needed.

     I had 2 drains in my right side one under the arm and the other under where my boob was. They  suggested that i sleep half sitting up with lots of pillows and i was quite comfortable. Some places do have recliners i believe. 

    The next morning a nurse helped me shower not getting any bandages  wet and i felt a lot better. She asked me if i would like to look in a mirror at myself.  She was an older nurse and was very compassionate, just lovely. 

    It wasn't until i got home that i took my time and had a good look with the bandages on. Not the prettist sight i must admit. Especially when you have one big boob. I focused on the fact that the other had those gremlins in it that were doing me harm and needed to go. 

    I stayed in hospital for 3 nights and i felt ready to go home then. 

    While i was in there my breast cancer nurse came and saw me and gave me a pillow to go under my arm which i used all the time and a bag to carry my drain bags in. These are given to you from Breast Cancer Australia at no cost.

    I was given pain killers, antibiotics, something for constipation, a proabotic to take when i got home.

    I slept on my back surrounded by heaps of pillows. I put my drains on the floor beside me.

    Hubby would help me get up and down until i eventually found i could do it myself.

    Couldn't do my long hair so had to get hubby to do it.  That was interesting to say the least as he didn't know how to put a band in. But we go by till i could do it myself.

    I did get some strange feelings, tingling and stinging and being sore especially under the arm.  It was very tight across your chest at first but  has now eased off a little. I am still numb under my arm.

    At one of my appointments with the breast nurse she gave me a couple of external soft prosthesis to take home and try with a bra.  They do give you a free bra as well but didn't have one in my size.

    She also gave me a sheet which has exercises that you have to do in stages.  I have been doing these heaps and now can stretch my arm up above my shoulder but not straight up.

    Last Friday which was 8 days since my op i woke up and felt the best i had. I went shopping with my daughter for a couple of hours and i bought a bra. Before i went into hospital I had bought a couple of stretchy tops like singlets or camies. I found these were good to wear especially having a big boob and with having the drains as it made them firmer and held them in place better. Because they stretch i found i could get them on with a little help from hubby at first. The bra i bought is one of those surgical ones with hooks and eyes down the front.  I have found this the most comfortable and my sister used the same type after she had her reconstructions.

    It took me a while to sort out putting the prosthesis in the bra and playing around until i got it looking the best i could. I must admit this has made me feel a lot better within myself. Even my husband said it looked good and you would never know. 

    I got the first drain out last Friday and the other out yesterday which is the best thing as you are not having to cart them around with you. I did forget a couple of times and started to move and then realised i had them attached.

    It is now 12 days since i had the mastectomy and i am still feeling tender and sore under the arm. They do say this can last a year or more after surgery if you have had lymph nodes removed. My tummy is still swollen on that side as well. No pain where the drains were at all.

    Once the bandages came off and i saw for the first time exactly what it looked like, i thought hummm it is neat but It is still hard to get my head around, but i just keep thinking of those little gremlins and it had to go.

    I've had a couple of cries at night time when i'm on my own.

    My treatment is basically the same as Liztay82 above. 

    I get my portacath in next week and then start chemo.

    Hope all goes well with your mastectomy and keep in touch.

    Michele X

     

  • hi lizlay82,

    yes that does help thank you. i do have income protection from super but cannot put a claim in till day 40 and have to wait till day 60 for any payments. does help in short term but atleast i will have someting coming in.

    as i work in a department store and i am around customers for my whole shift 5 hrs 4 days a week. we will have to wait and c how my body goes with the chemo. i have put in for 6 weeks off work from date of next surgery to give me time for recovery and 1st chemo treatment to see how body goes, then i will reasse work. My boss is good she said we will play it my ear but atleast they have a heads-up that i might not be back till after xmas pending on treatment.

     all the best in your recovery.

  • Hello mine is the same as ures all postive my chemo first I had was called ac I had that every 3 weeks 4 cycles with this type I had no issues at all I did get ulcers and in cycle 3/4 I had to get boosters for white cells but other then that I breezed it now I'm onto taxol/herception this is every week for 12 weeks (3 week herception this goes for 1 yr so July I finish this one ) I'm up to week 3 of this type after taxol my hair will start growing as herception isn't a chemo drug after chemo I'm onto radiation every day 6 weeks I think I'll be finished by December ummm work no I'm currently not allowed back till radiation is completed I work in childcare I've been off since march this yr I currently receive income protection from my super ring and see if u have this some supers don't. Hope this helps
  • Hello mine is the same as ures all postive my chemo first I had was called ac I had that every 3 weeks 4 cycles with this type I had no issues at all I did get ulcers and in cycle 3/4 I had to get boosters for white cells but other then that I breezed it now I'm onto taxol/herception this is every week for 12 weeks (3 week herception this goes for 1 yr so July I finish this one ) I'm up to week 3 of this type after taxol my hair will start growing as herception isn't a chemo drug after chemo I'm onto radiation every day 6 weeks I think I'll be finished by December ummm work no I'm currently not allowed back till radiation is completed I work in childcare I've been off since march this yr I currently receive income protection from my super ring and see if u have this some supers don't. Hope this helps