Forum Discussion
Jackie1
11 years agoMember
The nana naps are sneaking up on me!
Hi I'm Jackie, I was diagnosed with breast cancer in December 2013.
No family or friends had been touched by BC so it was, to say the least a surprise. Shock settled in a little later.
I have had six treatments of chemo over the first half of 2014, my mastectomy of my left breast took place on the 3rd of July and I have just finished six weeks of radiation.
I'm a strong women physically and mentally which has helped me cope amazingly with this ordeal...but I am really tired.
I handled the pain and being uncomfortable but when these naps sneak up on me no matter where I am I'm sunk. It's a weird feeling as one small part of me knows whats happening but the rest just slips away into a snore :)
11 Replies
- DeanneMemberI totally agree that there is a lack of rehab or medical support to recover and adjust after treatment for breast cancer. I wonder if this is the same for all cancers though? Maybe it has something to do with the differing treatment paths and the length of treatment for many people. Rehab after surgery or diagnosis of other conditions can be started soon after the event. On-going treatment such as chemo can make it more difficult to identify the point where rehab or other support would be best initiated. Having treatment for lymphoedema has opened my eyes to the sort of medical support that could really benefit all of us (physio, OT etc). Many issues could be minimized or avoided completely if everyone was assessed and given appropriate support and education. The health system seems to concentrate only on the medical treatment for the cancer itself and not the quality of life of the individual afterwards. I know that I have had to actively seek help with recovery or I would be still struggling I'm sure. Deanne
- MitaMember
Jacki, I still have the handout of notes on Energy Conservation from the OT in rehab. They're so sensible & easy to follow in everyday life.
But it totally tips upside down the usual belief that we keep running on the energy we have available & then collapse in a heap of fatigue when it runs out. Rather, it says think of energy as money in the bank .... which you store up and keep.
Like you plan your activities for the day with plenty of rest periods which you take BEFORE feeling tired. They don't have to be long.... just stop & do absolutely nothing, go blank in body and mind. In those times you're actually storing up your energy as if you're putting it for safe keeping in the bank. It even suggests you do things like splitting activities into two parts... with a brief blank rest period in the middle. So doing half the dishwasher, then coming back later to finish is spot on. But, BEFORE, you feel fatigued. Even maybe taking a break between showering & dressing. Each person gauges their own program according to their own fatigue level.
Believe me it works.... & it's an approach which can be applied in anyone's everyday life. ... but not on the detailed & intense scale which would follow major medical treatment. Interestingly, quite a few of my friends, who have no serious medical treatment issues to rehabiltate from .... have grabbed the notes on Energy Conservation to do just that.
To be frank, I'm puzzlied why rehab is considered a normal part of post-medical treatment in heart surgery & conditions, but, with breast cancer women seem to be largely left to deal with issues on the grounds they're inevitable...so just suck it up. I have a theory, it's because there's a higher proportion of men who are treated in the cardiac world.... but it's mainly women in the breast cancer world.
- MitaMember
Jacki, I still have the handout of notes on Energy Conservation from the OT in rehab. They're so sensible & easy to follow in everyday life.
But it totally tips upside down the usual belief that we keep running on the energy we have available & then collapse in a heap of fatigue when it runs out. Rather, it says think of energy as money in the bank .... which you store up and keep.
Like you plan your activities for the day with plenty of rest periods which you take BEFORE feeling tired. They don't have to be long.... just stop & do absolutely nothing, go blank in body and mind. In those times you're actually storing up your energy as if you're putting it for safe keeping in the bank. It even suggests you do things like splitting activities into two parts... with a brief blank rest period in the middle. So doing half the dishwasher, then coming back later to finish is spot on. But, BEFORE, you feel fatigued. Even maybe taking a break between showering & dressing. Each person gauges their own program according to their own fatigue level.
Believe me it works.... & it's an approach which can be applied in anyone's everyday life. ... but not on the detailed & intense scale which would follow major medical treatment. Interestingly, quite a few of my friends, who have no serious medical treatment issues to rehabiltate from .... have grabbed the notes on Energy Conservation to do just that.
To be frank, I'm puzzlied why rehab is considered a normal part of post-medical treatment in heart surgery & conditions, but, with breast cancer women seem to be largely left to deal with issues on the grounds they're inevitable...so just suck it up. I have a theory, it's because there's a higher proportion of men who are treated in the cardiac world.... but it's mainly women in the breast cancer world.
- MitaMember
Jacki, I still have the handout of notes on Energy Conservation from the OT in rehab. They're so sensible & easy to follow in everyday life.
But it totally tips upside down the usual belief that we keep running on the energy we have available & then collapse in a heap of fatigue when it runs out. Rather, it says think of energy as money in the bank .... which you store up and keep.
Like you plan your activities for the day with plenty of rest periods which you take BEFORE feeling tired. They don't have to be long.... just stop & do absolutely nothing, go blank in body and mind. In those times you're actually storing up your energy as if you're putting it for safe keeping in the bank. It even suggests you do things like splitting activities into two parts... with a brief blank rest period in the middle. So doing half the dishwasher, then coming back later to finish is spot on. But, BEFORE, you feel fatigued. Even maybe taking a break between showering & dressing. Each person gauges their own program according to their own fatigue level.
Believe me it works.... & it's an approach which can be applied in anyone's everyday life. ... but not on the detailed & intense scale which would follow major medical treatment. Interestingly, quite a few of my friends, who have no serious medical treatment issues to rehabiltate from .... have grabbed the notes on Energy Conservation to do just that.
To be frank, I'm puzzlied why rehab is considered a normal part of post-medical treatment in heart surgery & conditions, but, with breast cancer women seem to be largely left to deal with issues on the grounds they're inevitable...so just suck it up. I have a theory, it's because there's a higher proportion of men who are treated in the cardiac world.... but it's mainly women in the breast cancer world.
- Jackie1Member
I am probably not as bad as I was over the last eight months. I like I learned from her that you do things to conserve energy before a bout of fatigue hits. In other words, you conserve energy in the times before it runs out so it runs out less frequently & less intensely. Excellent advise and appreciated.
- Jackie1Member
I am happy to go with it these days. My naps in a positive light taught my kids to also be a little bit more dependant of me, especially if it hit when they got home from school. Cheers Karen
- MitaMember
Hi, Jackie. I had open heart surgery in March (just before being diagnosed with breast cancer!). But the rehab assistance afterwards was really helpful... especially as fatigue is a big problem, too. An occupational therapist gave me guidelines on what's called energy conservation. And they really worked. I learned from her that you do things to conserve energy before a bout of fatigue hits. In other words, you conserve energy in the times before it runs out so it runs out less frequently & less intensely. The thing I've noticed about the world of breast cancer is that there's not the same rehabilitation provided to deal with the aftermaths of treatment. I still follow the techniques that the OT taught me.
- Jackie1Member
Kids are great. I got given a single recliner and many a time I have woken to have been laid out and my blanket thrown on tucked up. Opening my eyes to see my kids still going about their usual thing is one of the best views in my world. Nice to meet you Robyn.
- Jackie1Member
If this is the worst of it then thats just fine with me. I have to admit that once I give in, afterwards I feel pretty good. Nice to meet you Donna
- Robyn_WMemberI remember that feeling.I recall walking up our stairs one evening,to go to bed,and I couldn't quite get to the top !! My daughter came to my rescue and gently pushed me with her hand on my back.When I reached the bed,I just fell across it and stayed that way,sound asleep,for about 4 hours.Its quite bizarre,and there is no other choice,other than to go with it.Take care.Cheers xoxRobyn