Forum Discussion

Catheriner1633's avatar
10 years ago

The difficulty of choosing optional treatment

Hi, has anyone else been in a position where they have had a hormone sensitive tumour and been offered +/-chemotherapy aswell if I want to have it?

Terrible position to be put in.

I'm interested in speaking to anyone in that position. what they chose to do and why.

Cheers, Catherine

33 Replies

  • Hi Catherine 

    i had hormone + breast cancer plus one lymph node positive

    the oncologist said he really wasn't sure what to do as it was a very small tumor and grade 1 , and just hell unlucky to find it in one of my nodes . 

    He asked if I had any thoughts about it and I said yes , I do not want Chemo , esp being a grade 1 cancer , he said he was happy with my decision , but if I had of wanted chemo he would have given me four rounds but he agrees that Chemo for a grade 1 cancer could do more harm than good , depending on my belief , he said some people are so scared of the cancer they want the chemo , I certainly did not and new in no uncertain terms so for me it was an easy decision . 

    Maybe just take some quiet time to yourself and follow your gut instinct with what feels right for you, I do understand your torment at being given the option to make suga a huge decision . 

    On my first surgery when the biopsy came back , they told me they had found a cancerous lymph node and I had to decide on a axillary clearance Or not .  I actually took 2 weeks out and went away to try and make my decision , I couldn't make it until I new for sure I was going to be completely ok with my decision whatever the outcome. 

    I think it boils down to your beliefs and what type of person you are and how you want to live your life , just trust in yourself and your feel strong about whatever decision you make .

    so my reason for not wanting chemo was easy , I don't believe it would have been good for my body , 

    i am 3 years down the track and doing great , I decided against tamoxifen also as I made all my decision base on my gut , and what I know about my body , everyone is different so listen to yourself 

    Peace be with you 

     

  • I have hormone receptor positive her2 negative. I was told once it is in your lymph nodes (as in my case) that trumps size and type, thus needing chemo.  I was told there wasn't really a choice.

    Good luck with the decision making, and choosing what is right for you.

    Jane

  • Hi Catherine,

    My cancer is hormone sensitive too.... i was told I HAD to have chemo, due to the sheer size  of my cancer (7cm) and it being in my Lymph nodes..... 

    I'm not sure why it would be 'optional' but I would definately be asking more in depth questions of your doctors as to why? Find out their thoughts and reasons and then make a decision.... It's not an easy one as chemo is tough, but a necessary evil is some cases....

    an informed decision is a good one ..... Hope you find the answers you need 

    Xx