Hi @KMAC46,
Welcome to the forum lovely. I've been away for a couple of days (a truly rare event) so have only just read your post.
Truly sux to be here but as you can already see there are so many wonderful people with so much warmth and support available.
There's probably not much more I can add that hasn't been said. Yes, the fear is real and normal and the range of emotions is indescribable to anyone who hasn't felt it. Not that that makes it any easier to deal with at the beginning. No matter how long doctors have worked in the medical field and how many patients the've treated.....they don't and won't ever get the full story unless they end up on this side of the table. I
I think one of the hardest things is that feeling of just being swept along like cattle through the dip feeling like you have no control and you just have to do what you're told.
You do! This is your show, you make the rules. You have to do what's best for you.
Don't want a port. Don't have one. I chose not too because I just didn't want a daily reminder of what was going on. I said no to the neulasta injection after the first one. You can say no.
Two of my work collegues have been diagnosed over the last year. One opted for surgery only as chemo was only a two-three percent benefit and the other lady opted for the whole shebang. Both triple neg and similar diagnoses. It's very individual.
Your team will be recommending their best course of action for a non return of the beast but ultimately it's your decision. No body can strap you to the table and force anything on you. In some ways deciding for yourself can be the most confusing part and trusting your own instincts is sometimes near impossible.
The chemo appointment is probably more daunting than the rest of them. I remember walking out of that one and collapsing in a blubbering mess on the floor in the middle of the oncology department. Once I got my shit together I sacked the oncologist for just being a heartless condescending bitch.'
Number two oncologist was far better even though I sacked him down the track anyhoo.
As it turned out most of the nasty things on the list of possible side effects did not happen. I worked for the most part, never got sick (I work in a public hospital), kept my hair and pretty much did everything I normally did. Gave up all the do's and don'ts after a month or so when nothing went drastically wrong and tried to continue as normally as possible. There were some crap days amongst it but a lot more that weren't.
There's no right or wrong way to deal with this thing. For the most part its just and hour by hour, day by day muddle through as best you can. Personally, I found being flat out busy was the best way to not think too hard.
All the best sweets. Every body is here for you should you need us. xoxoxoxoxoxo