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kezmusc's avatar
kezmusc
Member
7 years ago

Tamoxifen version 4 and a fantastic week

Like a bad movie that should never have had a sequel let alone 3, here goes round 4.

i've had another little Tamoxiholiday after getting into quite a serious funk a couple of weeks ago. This time I have ditched everything, the drugs, the drugs to counteract the side effects of the drugs, all the vitamins and supplements as well.  I didn't really think they were doing anything anyway after 10 months of taking them.

Each time I go off it, the side effects give a little and take a bit longer to kick back in.

This time after two weeks, they ALL GAVE UP.  

I have had the best week ever since D Day.  That's right, no hot flushes for a week. No foggy brain. A week of no aches and pains, no creaking clicking joints, no funky mood swings, no hot doona dance (and that was not in a good way either) :smile: Sleep, glorious, unbroken sleep and, even a bit of mojo coming back. :wink: 
I went for a decent trail ride up through the mountains on my horse and was not crippled the next day.  The only thing that didn't return quite as well as it has been previously is my short term memory, which is somewhat disturbing but it's not terribly bad.  

I've  been on a bit of a high actually. So, so good to feel normal again.  Kind of like a good drug you want more of :blush:   So I am really dragging my feet on popping that pill again.

The best thing is that I have been able to do some serious, clear headed thinking and soul searching.  I have decided this will be the last time.  If I can't get it under control there won't be a version 5.  I am content with this decision and am not prepared to spend 10 yrs feeling like a moody, teary, achy, no mojo, foggy space cadet for an extra 6% maybe.  If it comes back will I blame myself?  I have heard and read of too many recurrences even after doing all the right things for years so I don't think so.  I would never have known either way. Quite frankly given the amount of spread that was already there I think I'm going to be pretty lucky if it doesn't reappear even with the drugs.  Let's hope the chemo did it's job. That's not meant to sound negative of morbid just realistic.
My onc has handed the reins over to me and I am to call him if I want to try any of the other drugs. Apart from that "see you in 6 months".  I think he's given up LOL

Anyhoo all that being said I really do want to do everything that has been recommended.  I am hoping going into it feeling this good in mind and body, and armed with some tips and ammo from my new found friend in the UK , it will get sorted.

I am off to have a glass of wine. (ok, it's the third one) So cheers to giving version 4 an absolute red hot crack and slapping this bitch into submission.

Thanks you for listening once again lovelies. 

 xoxoxoxo

Theme song for the day................White Snake.................Here I go again.

  • Anonymous's avatar
    Anonymous
    Dear @kezmusc I think our bodies let us know if a drug isn’t right or us. Best of luck with your decision. 
  • @kezmusc. U have definitely tried your hardest with this drug. If u r that miserable on it u are doing the best thing for yourself - I had a friend that was on letrazole and felt like killing herself - she said no point in being alive if I don’t want to be here - she changed to tamoxifen and has been ok in it - amazing how we all react so differently. Good luck with your final try and enjoy that wine and ciggie xoxo
  • I hear you @Zoffiel,

    It is very difficult to submit (for want of a better word) to being a continual patient for what seems like forever. Knowing that  one little pill is causing you to feel this way but being conflicted in a thousand ways about flicking it. My onc has suggested that with this many issues on the Tamoxifen, Anastrozole would probably do my head in for good.  So kudos for hanging in this long. He hasn't said that in so many words, due to butt covering I guess, but that's what I get out of it.

    I feel like a big weight has been lifted with finally making a firm decision. However, I will give it my best shot again.  This will be it. No guilt, no regrets.

    If you are ever down Ipswich way, I think we should hit the pub. I am sure it would be an amusing, if not somewhat dark humoured and sardonic night. 

     xoxoxoxo
  • I think you have done the best you can Kez, and you certainly haven't made any hasty decisions. After thet first month or so I had no noticeable side effects when on Tamoxifen. None. I also had a recurrence that, I believe, had been brewing for at least three years before anyone else could see it. No pain no gain? Who knows.

    If pain means it's working bloody Anastrozole might save my life but, like you, I'm finding the twilight existence of being alive but not really living is terribly challenging. It's increasingly likely I will make a similar decision soon as I don't want to continue to be non productive. I keep thinking 'give it another month' . We will see.

    Yours in wine and cigarettes. In moderation, of course. Mxx
  • You're doing what's right for you, and making an informed choice.
    I'm sure your onc has suggested trialling an AI, as you might not react to them, but that's a decision for you.
    Fingers crossed, whichever way it goes
  • It sounds like you're doing all you can. Misery without hope of improvement is no life at all, but still, fingers crossed for 4.