Hi everyone, I'm new to both BC and this forum. I was diagnosed with invasive LC (triple neg) and LCIS (hormone pos) in Oct 22, aged 43. I've had WLE, chemo and radiation. Am now on baby tamoxifen 5mg. First few weeks were ok but now I just feel like crap. Fatigue, nausea, heavy feeling in my pelvis, Aches and pains, head aches. Is this all normal and anyone else have the same? Am a bit paranoid it is not the baby tam but something else...the anxiety is a killer!

Hi @Viv_1979, talk to your oncologist. I took tamoxifen for 18 months but fatigue and breathlessness were hard for me so I switched meds to AI. I did not have the side effects you are experiencing. If you have a breast care nurse have a chat to them but definitely give your oncologist a call. Best wishes to you.

Oh yes, I get cranky when these plum colour bruises appear - mainly on the hands and arms. No recollection of knocking into something to cause same!My Mum was the same at this age so I assumed it was in my make-up. She didn't have Breast Cancer but was on lots of meds for other ailments. So maybe it's the meds......

Hi @Viv_1979 - SO sorry to see you join our select little group - hopefully we can help you thru this difficult time xx. Make sure you let your Onc know of these side effects - you do NOT have to put up with them, unassisted xx. Please feel free to join the private Triple Negative group - jump on here & hit 'join'https://onlinenetwork.bcna.org.au/group/30-triple-negative-breast-cancer-tnbcIt looks like you've got a double bunger - both triple negative AND hormone positive .... hence the Tamoxifen. Often it has 'less side effects' that some of the other Aromatase Inhibitors .... but it basically puts you into 'menopause', hence the weird stuff happening to you just now.Can I ask what your age is? Had you gone thru menopause already? Even if you had, the meds will ignite some of the 'side effects' too :( What region do you live in? Are you in a city or regional/rural? We may have members nearby who can point you to available support groups nearby. (You can add your 'general' location to your profile.)Also, check out this post, which shows a lot of other areas in the forum that you may like to explore - showing off your furkids, your garden, art & craft & many other things .... we even have some laughs & share 'wise sayings' too .... https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latesttake care x

Hi @RedRose77. Im not on tamoxifen got switched to anastrozole. I have those lovely bruises on my face. I have discovered that I scratch my face during my sleep or if i wear my rings to bed the bruises are bigger and worse. i sleep on my side with my hands under my face. I have to keep my nail very short or the scratch marks are like I’ve been attacked. I didn’t know what i looked like while sleeping because thats not the way I start out. My daughter informed me. Since going on the Ibrance the purple blotches are not restricted to my face. My arms have always got some sort of purple bruise somewhere. It only takes a brush up against something to create one. Other than sitting around doing nothing which is not going happen i have learnt to live with them. I don’t even bother covering them up anymore the makeup routine took too much time. I have been told the older you are the thinner your skin gets. And our treatment does age us a bit faster. My oncologist once said that she probably aged me about 10 years I hope this helps when you see your oncologist next ask him/her about it.

@RedRose77 I would send you a picture of mine but might not look too pretty theres one on my wrist thats about 2 inches by 2inches the one on my face atm is like the grandkids got to me with a texta. Did the washing today and now have 3 more to add to the collection on my arm and of all places my fingermy SIL reckons its old age. But she’s older than me and doesn’t get them quite like these. My brother who is on hormone blocker for metastatic prostate cancer gets ones like mineone thing i did notice is if I knock myself hard enough. i bleed like a stuck pig and its the tiniest nick. Which takes weeks to heal. This cancer ride is certainly challenging. Let me know what your oncologist says about it if I remember i see mine next Thursday I’ll ask her

Tamoxifen side effects | BCNA Online Network

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arpie
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Hi @Viv_1979 - SO sorry to see you join our select little group - hopefully we can help you thru this difficult time xx. Make sure you let your Onc know of these side effects - you do NOT have to put up with them, unassisted xx.

Please feel free to join the private Triple Negative group - jump on here & hit 'join'
https://onlinenetwork.bcna.org.au/group/30-triple-negative-breast-cancer-tnbc

It looks like you've got a double bunger - both triple negative AND hormone positive .... hence the Tamoxifen. Often it has 'less side effects' that some of the other Aromatase Inhibitors .... but it basically puts you into 'menopause', hence the weird stuff happening to you just now.

Can I ask what your age is? Had you gone thru menopause already? Even if you had, the meds will ignite some of the 'side effects' too :(

What region do you live in? Are you in a city or regional/rural? We may have members nearby who can point you to available support groups nearby. (You can add your 'general' location to your profile.)

Also, check out this post, which shows a lot of other areas in the forum that you may like to explore - showing off your furkids, your garden, art & craft & many other things .... we even have some laughs & share 'wise sayings' too ....
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest

take care x

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