Forum Discussion
Viv_1979
2 years agoMember
Tamoxifen side effects
Hi everyone, I'm new to both BC and this forum. I was diagnosed with invasive LC (triple neg) and LCIS (hormone pos) in Oct 22, aged 43. I've had WLE, chemo and radiation. Am now on baby tamoxifen 5mg...
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marg16
2 years agoMember
Hi @Viv_1979, I trust that you have managed to get some advice from your oncologist. I had a mastectomy end of October including lymph node removal and commenced 5mg tamoxifen about 10 days ago. I have been monitoring the symptoms pre-tamox and now post-tamox to see if it is "me" and menopause (which I struggled with anyway) and what are the effects of tamoxifen - basically to separate them. Over the next couple of weeks I need to increase the dose to 10mg per day and have been warned it could be a difficult 3 - 6months as it all settles. I get the menopause symptoms and headaches in the morning and focus on hydration to try and relieve that which I have some success with. I was told to "play around" with the timing of the dose and to take it after breakfast to reduce nausea, and I find I also need to take metamucil daily. Bloating and swollen ankles are becoming a daily occurrence :-(. I have really low days and some days quite good and am seeing a counsellor to help with that however that occurred pre-tamox. So I am back in 6 weeks (now 4 and a half) to speak with the oncologist and will be able to provide an update to her then on the side effects caused by the tamoxifen and ask what I can do to relieve them, particularly if the strategies I am putting into place are not working. For me, quality of life is very important. Good luck in these early days of treatment and trying to establish a new norm for yourself. <3
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