Forum Discussion

Wendy__paris's avatar
9 years ago

Tamoxafin

I am due to start taking this next week how  others found it ?i am post menopausal 

9 Replies

  • Hi, I've been on tamoxifen for 18 months now and am a lucky one with very few side effects.  I take mine at night before I go to bed.
  • Hey, I was on Tamoxifen for 4yrs at age 43, I had no side effects but a recurrence inspite of it. I then had Chemo which threw me into menopause and now am on Arimidex which my Oncologist said in my case will be better. I have side effects but am seeing a little at the moment that its not the medication but menopause causing more of my symptoms plus side effects from chemo still lingering. Im off it for 6 weeks as per my Oncologist visit last week, so we will see. All you can do is try it, if you feel its not great change it. :) Melinda xo
  • I was on Tamoxafin for a few months, my oncologist sugested as I was menopausal that I could try arimidex. i have now been on arimidex  for about 12 months. I feel better in myself as apparently if you listen to my husband I was a bitch on Tamoxafin. I was also very anxious on it. I struggle with arimidex with terrible joint pain and hot flushes.
    There are side effects from both , good luck
  • I wouldn't be on it if my chemo specialist would allow me not to take it but I am stuck with it. Hot flushes, lethargy, bone aches and a generally fuzzy brain for me. Ok, and moods and depression but I don't let on, just soldier on and one day I will be off it and free! yay! B)
  • I have been in it for six months.  I had some mild headaches at first which my oncologist said weren't from the tamoxifen.  I also was quick to anger for a while, again the oncologist said it wasn't a side effect.  The hot flushes is definitely a side effect but they haven't been too bad, I can cope with them and they seem to be settling down. I am tired a lot, don't know if that is the tamoxifen.  So for me it's doable.   Good luck.  Karen 
  • Hi Wendy, I have been on tamoxifen for 9 months. It was a little dawnting at first and it took a month but the side effects settled. I got some headaches and some minor side effects. The main thing is some joint pain. I hope it all goes well.