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WavingNotDrowni's avatar
10 years ago

Talking to Doctors about feelings

Hi All

 

I am trying to come to terms with the course of treatment I was persuaded to embark upon.  And, while it is too late now to change I wanted to talk to my surgeon about how I felt.  Specifically about not being given all the facts at the start.  I wrote a "speech" so I could ensure I remembered what I wanted to say but didn't quite get to deliver much of it.  The surgeon thought I wanted to know more about the technical aspects of the SNB and spent 1/2 an hour explaining it.  My issue is that having had neo-adjuvant chemo I am much more likely to need a full node clearance as SNB might not work. Thus I am 5 times more likely to develop lymphedema (using stats provided by surgeon).  There is no advantage in terms of survival to have neo adjuvant chemo first so I am still thinking why could I not have had the mastectomy at the start which is what I asked for.  I could then have had the SNB possibly avoiding full node clearance and also possibly avoiding radiotherapy and all the risks associated with that.  Obviously I am not looking for answers here but I am so frustrated that I cannot talk to my surgeon that I am seriously considering changing - which everyone (including me) will think I am mad to do as she is very highly regarded.  I think this qualifies as a rant.  Sorry.

 

 

 

 

22 Replies

  • Rant away... need to get that frustration out.

    And surgeons are no good at communication (in my experience at least). They kind of see us as slabs of meat and have their own strong opinions on what is to be done and block off anything else :(

    I second what Brenda suggested. Talk to the breast care nurse - tell her about yoir feelings on the matter and what you need and she can help you work out best way forward...

    And in the meanwhile we are here - so feel free to tell us anything you need to ?

    XXXX

    Jel.

  • Have a talk with your Mcgrath breast nurse and air your concerns, she can act as a go between for you.