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Lelouak's avatar
Lelouak
Member
11 years ago

Surgery Results

I had my surgery on a Thursday morning. I was told that my results would be through maybe Monday, but probably Tuesday. The weekend passed quickly; thankfully. I had decided that I wouldn't hear anything on Monday so that day wasn't bad. Tuesday however was the worst. The phone rang, it was a charity looking for donations, then my husband, basically everyone but my surgeon! Eventually she rang me at 5pm, the wait was over. She had removed an 18mm grade 3 IDC and a 30mm DCIS. Margins around the IDC were excellent, one around the DCIS was only 2mm, the rest were really good. Two stray cancer cells were found in the subcapsular area of the one lymph node that was removed. Although she thought more surgery would not be required, she wanted to discuss my results with various oncologists and pathologists that she meets with regularly to get their opinion. It was now going to be an agonising wait until Friday afternoon when I saw her again. When I saw her on Friday, she removed my dressings, that was the most unpleasant part of this whole process so far and we discussed my results again in some more detail. The DCIS had taken me a bit by suprise as I had no idea it was there. Everyone at the meeting agreed that my smallest margin was fine and the lymph node issue was not an issue. No more surgery, yay :) So I'm off to see my husbands oncologist to discuss chemo options, I think we should get a family discount. I've got a meeting booked with a radiation oncologist at the end of October. My surgeon has also recommended I see a geneticist for testing. Although we do not have a prevalence for any sort of cancer in my family, my great grandmother had breast cancer and I have other relatives that have had lumps removed that nobody is supposed to know about. I have two sisters and two daughters, for my own peace of mind, I think I'd like to know if I have the BRCA gene mutation. My surgeon thinks the likelihood is small, but you just never know. So now I'm playing the waiting game to see the oncologist as he's currently on leave. I'd just like to get my treatment plan on paper now. I have a friend visiting from back home at the end of November and there's plenty of wine that needs to be drunk as this year is being equally rubbish to her.

7 Replies

  • Seems that venting helps more than any pills. I have wonderful support in family and friends but I don't want to lose that by being down in front of them constantly. So thank you for listening to my grizzling and good luck to you too. Nicole x
  • Thanks for your reply. What is the heart scan for? Has your treatment affected your heart or is your doctor just being thorough? I hope all is good for you too. I think all the tests would be so much easier to handle if they would just be honest about exactly what you will experience and why. Not one person on my so called "multidisciplinary team" has given me the full story on my diagnosis, treatment, tests, procedures or outcomes let alone been forthcoming with information or results. I hope you have better luck with your medical team. Take care. Nicole x
  • Agreed, vent as much as you like. Better out than in. You're allowed to feel sorry for yourself, what you're going through isn't pleasant and life has a habit of sticking other stuff for us to deal with in the picture as well! Everyday it will get better and everyday is a day closer to treatment being over. Good luck with everything and we're all here for you xx
  • Hi vent away it does help, we all feel crap at some time. Sorry to hear you lost your sister.

    My day hasn't been the best either I have just got home from having my heart scan lots of fun. So sick of all the tests and appointments ,they keep coming, back to the plastic surgeon friday, another herceptin visit early november, then hopefully the last of my surgery to even up my boobs and get a nipple on my new one. Friday will come fast and hopefully good news hang in there.

  • Hi to you girls. I don't really know how to use this site. Very frustrating. Mostly I'd just like to talk to others going through the same thing. Like a 24/7 chat site for bc but I still can't seem to connect or reconnect with anyone. I noticed your post via the search icon. I was diagnosed in June with early breast cancer at 49. I'm still getting over losing my hair 3wks into chemo. I turned 50 & had to cancel our trip to phuket. Now after 3 months of chemo I had a Dbl partial mastectomy/reconstruction last Tuesday. I lost my 52yr old sister suddenly in between all of this fun. I find it hard to stay positive waiting for my results not available till Friday. I feel like I will never be the same. Mostly I pretend I'm fine but today I just can't. I'm feeling really sore and sorry for myself. Hope it's ok to vent on here. Nicole x
  • Hi to you girls. I don't really know how to use this site. Very frustrating. Mostly I'd just like to talk to others going through the same thing. Like a 24/7 chat site for bc but I still can't seem to connect or reconnect with anyone. I noticed your post via the search icon. I was diagnosed in June with early breast cancer at 49. I'm still getting over losing my hair 3wks into chemo. I turned 50 & had to cancel our trip to phuket. Now after 3 months of chemo I had a Dbl partial mastectomy/reconstruction last Tuesday. I lost my 52yr old sister suddenly in between all of this fun. I find it hard to stay positive waiting for my results not available till Friday. I feel like I will never be the same. Mostly I pretend I'm fine but today I just can't. I'm feeling really sore and sorry for myself. Hope it's ok to vent on here. Nicole x
  • Hi to you girls. I don't really know how to use this site. Very frustrating. Mostly I'd just like to talk to others going through the same thing. Like a 24/7 chat site for bc but I still can't seem to connect or reconnect with anyone. I noticed your post via the search icon. I was diagnosed in June with early breast cancer at 49. I'm still getting over losing my hair 3wks into chemo. I turned 50 & had to cancel our trip to phuket. Now after 3 months of chemo I had a Dbl partial mastectomy/reconstruction last Tuesday. I lost my 52yr old sister suddenly in between all of this fun. I find it hard to stay positive waiting for my results not available till Friday. I feel like I will never be the same. Mostly I pretend I'm fine but today I just can't. I'm feeling really sore and sorry for myself. Hope it's ok to vent on here. Nicole x