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Jules74's avatar
Jules74
Member
12 years ago

Surgery done!

Okey doke, it's Sat Nov 16 & I'm laying in a hospital bed at RBH having had a wide local excision & sentinel node biopsy yesterday afternoon, right now I can honestly say the only pain I have is a sore throat from the intubation. It was a long day at hospital so let me lay it out: - 6.30am admission - 7.30 am up to nuclear medicine to begin sentinel node tracing / mapping. Rec'd 4 needles around the area of the lesions of radioactive material. They were all on about how much it was going to hurt & that I'd have to hold someone's hand (which I didn't). 3 of the 4 needles hurt less than a blood test, 1 was a bit of a bastard coz bit was up closer to the sensitive nipple area. Had to firmly massage my breast after that to get the stuff moving. After 30 mins they did the first lot of CT scans to see if they could identify the node. Unfortunately it had only just started to show up so they made me & mum hang around for a further 50 mins to try another set. On 2nd go they got a beautiful pic if the first 2 nodes & marked them with crosses using a black texta. Surprisingly to me they were not under my arm but basically on top of my boob towards the arm pit. - 10.30 am off to ultrasound to have the hook wires put in. Firstly I had a very thorough ultrasound done to identify the location of the lesions. Than the radiologist who was going to perform the procedure came in. She was clearly VERY experienced & very frank & straightforward. She had a look around herself with ultrasound & identified not only the first 3 lesions that had originally been seen but 2 more to be wired. She was very clear that she could see many areas of irregularity, common with invasive lobular (that is hard to identify coz it can mimic regular breast tissue). She was actually quite alarmed that the surgeons were JUST doing a lumpectomy because in her opinion of seeing my types so many times she believed it was far more pervasive in my breast & they needed to be more aggressive. She also warned of the high likelihood of it's appearance in my other breast. She talked about the constant argument she had with surgeons about their initial minimally invasive approach when 99 times out of 100 they have to go back & be radical. I did not at all feel like she was scaremongering, I felt that she really had seen it 1,000 times & was concerned for me. Anyway, all that on board we proceeded with the hook wiring. This is done under local anaesthetic & the wires are inserted under ultrasound guidance. She inserted the first through 3 lesions in a row. I have sense breasts, the lesions were deep & clearly tough masses. I won't lie her using a good bit of strength to push that wire through hurt like a mofo. I didn't cry or anything but def curled m ties & said "you fucker" once or twice - lol. Second one in comparison was a piece if cake as the 2 lesions were relatively close to the surface. - on to theatre around lunchtime. Quite a bit if waiting around where they ask you the same questions 50,000 times. Seen by an anaesthetist for the first time whilst waiting. Got taken through the surgery prep room just after 2pm to lay on a gurney & wait. Brief wait & question time there before being taken in to the room out use the actual theatre to have the drip put in. I rec'd a shit if an anxiety medication that I swear was called Bedazzle (lol) & felt pretty good. The anaesthetist, a couple nurses & the surgeon came out & spoke to me at this time. The surgeon (nice youngish guy I had met before) said to me "so, I heard you had a pretty interesting discussion down stairs today". We talked about it, he didn't necessarily disagree with the while thing but said given my age (39) he really did feel that at least giving the less invasive procedure a go first was well worth the shot. I agreed. He said if I have to come back for more surgery that it would be within 2 wks. We went over the planned procedure again & he explained his 3 incision options to me & asked which I'd prefer. I said if it was about where the scar was & how it would look didn't care. I asked him to make the incision in the way he was most comfortable & felt gave him the best access to the lesions. He said he would be doing one to match the curve of my breast & taking a wedge shape out (which he very clearly showed me on my breast) to get the lesions & hopefully a clear margin. I would have a separate incision at the too if my breast to get the 2 nodes that had been identified. There was of course still a chance if full axillary clearance depending on what pathology said whilst I was under. Wheeled thru to theatre where I lay whilst waiting for the surgical team to finish prepping, the anaesthetist was right there by my head giving me oxygen & more "bedazzle". I was under before I knew it. Last thing I knew til waking in recovery, usual super drowsy wake up at first but then wide awake chatting & wanting to be entertained. It was after 6pm by then & unfortunately was bit briefed by the surgical staff about the actual procedure, that will happen this morning. However, there had def been no axillary clearance & in fact no involvement if my underarm at all which I imagine will make for a quick & easy recovery from this first surgery. Was given both endone & Panadol on a fairly regular basis through the night. Didn't come to ward with a drip but they ended up connecting one as they were unable to get my blood pressure back up throughout the night. Still low but at least acceptable this morning. I'm young, fit & healthy so don't anticipate it preventing me from being discharged later this morning. The drip needle itself is causing more discomfort than the breast which is totally wrapped in a surgical pressure bandage. Don't even know if they took 1 node or 2 but think it was prob 2. - looking forward to my consultation this morning to find out all the gory details. My mood is still very up & ready to take on whatever is necessary. I'll def make the most if that for now. Will keep all you lovely ladies posted as perhaps someone coming up behind me can benefit from the detail of what to expect. Jules :-)

9 Replies

  • Well done. This post will be very helpful for those coming after you learning about one of the possible procedures they might have. Glad to know you are still 'up' and your attitude is terrific. Good luck with your results. Big hugs Janey xxx
  • I had a core biopsy done at Breastscreen Australia.  I had the mammogram one week and I had to go back a week later for the results and to speak with the doctor.  She said, we should do a biopsy just to be sure it is a cyst (they thought it looked like a cyst).  I said when would you like to do that.  She said now?  I didn't have time to think about it.  She was fantastic, didn't feel the local, I only felt pushing for the biopsy AND they let me have a look at the core that they removed (I don't have a squeemish tummy for blood and guts and I wanted to see).

    The first surgeon that I saw (whom I didn't go with) did a lymph node aspiration in his office at my first consult with him.  I didn't like that at all.  It didn't hurt but I felt like I had been railroaded into it.  It was a benign node but he wanted to test it anyway.  Then he had me booked to see all and sundry specialists in one week at horrendous expense.  I got thoroughly upset about it all and I went looking for a more empathetic surgeon.  Thankfully I found a really good one.

    Cas

  • I apprcciate the detail but well done for getting through it but just to let others know that there are variations-of course--on a theme. My surgeon booked me in for biopsy and for that nuclear medicine -4 needles around the breast area on two separate occasions before my surgery--the biopsy so she knew what we were dealing with and the nuclear medicine 4 needles the night before surgery.  I wished i had some medication on board for the biospy as the whole thing was a bit confronting and a bit painful; but the four needles around the breast was a walk in the park--admittedly i did have a relaxant on board so a carefree walk ..but i thought i didnt really need it..

    i dont know what the hook wire thing is but sure i didnt have one of those

    the surgery was fine; and my lymph node was the most 'tender' and took longer to 'heal'.  I did see pictures of a lumpeectomy but my results are 'better' with my surgeon cutting on the curve of the nipple so there is no obvious scar- and then went towards the left --that impressed me post surgery and also caught the eyes of my radiation crew at another hospital who said thats 'doctor ..........work''

    wonder if there is different experiences according to states?  ive also heard of biopsy done at time of mammagram and that doesnt appeal to me either; i felt very confident in my surgeon who wanted me done by a biospy specialist in her hospital; 

  • So glad to read how well you have come through your lumpectomy and hope your throat is feeling better now.

    Your surgeon will hopefully have your pathology by Monday and your treatment plan will take shape. Will be thinking of you, and hope they let you home for some of the weekend. I went throught the same long day last year, from 7.30am checkin to 7pm surgery. It seemed a week long!

    Keep in touch and let us know your program.  Sending you a big hug - Michelle xx

  • So glad to read how well you have come through your lumpectomy and hope your throat is feeling better now.

    Your surgeon will hopefully have your pathology by Monday and your treatment plan will take shape. Will be thinking of you, and hope they let you home for some of the weekend. I went throught the same long day last year, from 7.30am checkin to 7pm surgery. It seemed a week long!

    Keep in touch and let us know your program.  Sending you a big hug - Michelle xx

  • So glad to read how well you have come through your lumpectomy and hope your throat is feeling better now.

    Your surgeon will hopefully have your pathology by Monday and your treatment plan will take shape. Will be thinking of you, and hope they let you home for some of the weekend. I went throught the same long day last year, from 7.30am checkin to 7pm surgery. It seemed a week long!

    Keep in touch and let us know your program.  Sending you a big hug - Michelle xx

  • Hi Julie,

    After reading your description of hook wire insertion and hearing it from others I'm thoroughly happy to have had a mastectomy.  I went to radiology at a different place to the hospital in which I was having surgery.  I remember the nurse at radiology saying now this is what will happen, the doctor will come and do 4 needles, 3 won't hurt but the 4th is painful.  Then he'll insert a hook wire so that the surgeon will be able to find the tumour.  I looked straight at her and said "If he can't find one tumour that is 5.6cm across then I seriously do not want him coming anywhere near me with a scalpel".  She hadn't even looked at my file.  As for the 4th needle hurting, I got myself all in a tizz about it being painful, I don't like needles, and I didn't feel a thing with any of them.  There wasn't any hookwire because the decision had already been made to do a mastectomy.  Lesson learned, grill every person that comes near you so that you know you are on the same page from the outset.

    We then rushed to the hospital because I had been informed the day before that I was 4th on the surgeons operating list.  Half hour drive between radiology and hospital and we made it by 11.45am.  Sat for 2 hours, then I was called in to preop, gowned and left to sit on the bed for 10 minutes.  Next told that the nurse had made a mistake and would I like to sit in a waiting room nearby.  I said ok thinking it might be another hour.  Two and half hours later I was upset, cold, annoyed so I went looking for this nurse to ask if I could be sent up to a ward to wait.  I was close to losing it and really having a full on temper tantrum.  Thankfully a bed was found (private hospital mind you) and I was taken up.  I waited another 2.5 hours in the ward.  So from arrival (after all the radiology had been done) to being wheeled into surgery took 7.75 hours and that nurse would have left me on that uncomfortable chair in a waiting room by myself for at least 5.5 hours if I hadn't complained.

    I've put in a formal complaint since and been apologised to profusely by the hospital.  That nurse has been spoken to.  So, ask questions, demand to be treated fairly and empathetically and know that you deserve the best. 

    Glad you are in high spirits this morning.  It is a heck of a shock to the system when you are diagnosed and everything moves so quickly.  You discover tests and services that you would otherwise have never known about.

    We're all here to listen and chat with when you feel up to it.  I've had some seriously wonderful people help me along with answers and support.

    Cas

  • Hi Julie,

    After reading your description of hook wire insertion and hearing it from others I'm thoroughly happy to have had a mastectomy.  I went to radiology at a different place to the hospital in which I was having surgery.  I remember the nurse at radiology saying now this is what will happen, the doctor will come and do 4 needles, 3 won't hurt but the 4th is painful.  Then he'll insert a hook wire so that the surgeon will be able to find the tumour.  I looked straight at her and said "If he can't find one tumour that is 5.6cm across then I seriously do not want him coming anywhere near me with a scalpel".  She hadn't even looked at my file.  As for the 4th needle hurting, I got myself all in a tizz about it being painful, I don't like needles, and I didn't feel a thing with any of them.  There wasn't any hookwire because the decision had already been made to do a mastectomy.  Lesson learned, grill every person that comes near you so that you know you are on the same page from the outset.

    We then rushed to the hospital because I had been informed the day before that I was 4th on the surgeons operating list.  Half hour drive between radiology and hospital and we made it by 11.45am.  Sat for 2 hours, then I was called in to preop, gowned and left to sit on the bed for 10 minutes.  Next told that the nurse had made a mistake and would I like to sit in a waiting room nearby.  I said ok thinking it might be another hour.  Two and half hours later I was upset, cold, annoyed so I went looking for this nurse to ask if I could be sent up to a ward to wait.  I was close to losing it and really having a full on temper tantrum.  Thankfully a bed was found (private hospital mind you) and I was taken up.  I waited another 2.5 hours in the ward.  So from arrival (after all the radiology had been done) to being wheeled into surgery took 7.75 hours and that nurse would have left me on that uncomfortable chair in a waiting room by myself for at least 5.5 hours if I hadn't complained.

    I've put in a formal complaint since and been apologised to profusely by the hospital.  That nurse has been spoken to.  So, ask questions, demand to be treated fairly and empathetically and know that you deserve the best. 

    Glad you are in high spirits this morning.  It is a heck of a shock to the system when you are diagnosed and everything moves so quickly.  You discover tests and services that you would otherwise have never known about.

    We're all here to listen and chat with when you feel up to it.  I've had some seriously wonderful people help me along with answers and support.

    Cas

  • Hi Julie,

    After reading your description of hook wire insertion and hearing it from others I'm thoroughly happy to have had a mastectomy.  I went to radiology at a different place to the hospital in which I was having surgery.  I remember the nurse at radiology saying now this is what will happen, the doctor will come and do 4 needles, 3 won't hurt but the 4th is painful.  Then he'll insert a hook wire so that the surgeon will be able to find the tumour.  I looked straight at her and said "If he can't find one tumour that is 5.6cm across then I seriously do not want him coming anywhere near me with a scalpel".  She hadn't even looked at my file.  As for the 4th needle hurting, I got myself all in a tizz about it being painful, I don't like needles, and I didn't feel a thing with any of them.  There wasn't any hookwire because the decision had already been made to do a mastectomy.  Lesson learned, grill every person that comes near you so that you know you are on the same page from the outset.

    We then rushed to the hospital because I had been informed the day before that I was 4th on the surgeons operating list.  Half hour drive between radiology and hospital and we made it by 11.45am.  Sat for 2 hours, then I was called in to preop, gowned and left to sit on the bed for 10 minutes.  Next told that the nurse had made a mistake and would I like to sit in a waiting room nearby.  I said ok thinking it might be another hour.  Two and half hours later I was upset, cold, annoyed so I went looking for this nurse to ask if I could be sent up to a ward to wait.  I was close to losing it and really having a full on temper tantrum.  Thankfully a bed was found (private hospital mind you) and I was taken up.  I waited another 2.5 hours in the ward.  So from arrival (after all the radiology had been done) to being wheeled into surgery took 7.75 hours and that nurse would have left me on that uncomfortable chair in a waiting room by myself for at least 5.5 hours if I hadn't complained.

    I've put in a formal complaint since and been apologised to profusely by the hospital.  That nurse has been spoken to.  So, ask questions, demand to be treated fairly and empathetically and know that you deserve the best. 

    Glad you are in high spirits this morning.  It is a heck of a shock to the system when you are diagnosed and everything moves so quickly.  You discover tests and services that you would otherwise have never known about.

    We're all here to listen and chat with when you feel up to it.  I've had some seriously wonderful people help me along with answers and support.

    Cas