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Kazza732's avatar
Kazza732
Member
10 years ago

Support in unbelievable

Hi all feeling oveewhelmed at all the support and information that is available to us on our journey. . I see  specialist in 3 days yo get parthology results from surgery  and wander how quickly i will be seeing oncologist 

9 Replies

  • Paula, sorry to hear you had a rough time.  Not sure how things work in your state (I'm in Nth Qld) but I think once you get to oncology/radiation you will find it a whole different experience.  I have treatment in both private (oncology) and public (radiation) and everyone from the receptionists to the doctors are fantastic.  No special treatment but they certainly know how to help and what to say without you asking.  "Caring without the Pity".

    I hope things get better for you and your future treatment is much better.

    Kari

  • Hi there 

    I'm so happy you are feeling supported, you deserve that. I too am in the waiting stage of post op and seeing oncologist. Other than my beautiful incredible family & friends and some kind reassurances on here, I have been surprised by the lack of extra support. I travelled for my op to the best private breast care hospital in my state, my dr was great and his receptionist was incredible(bless her kind heart),  but in hospital it was all very unsupportive,  I was literally given endone and that was it on discharge. I was actually so upset by it in those emotional days just after surgery. I found the nurses to be not overly caring or kind and in fact felt that I was a burden. It would take 20mins to get a response and an attitude of annoyance to help me to the toilet as I had a drain on one side( which was tied to the bed) and a drip on the other. The whole time I was in there the words breast cancer were not mentioned once. I felt very alone and so requested to be discharged a day early. I know it might seem like a "suck it up princess" situation, however I wasn't expecting a fuss or any special treatment,  just a little kindness, reassurance and information during a very vulnerable and worrying time! I actually think it has contributed to my current anxiety and depressed feelings I have now, the power of support and kindness can be underestimated. 

  • Hi there, If you haven't already, I would recommend getting the My Journey Kit (available on this site).  It really helped me at the beginning to wade through all the information.

    Best of luck with it, hopefully you will be like myself and not have too many side effects from the Chemo.

    Kari

  • Thanks Ann-Marie  some of the information os very confronting and scary to see.. but i guessus girls keep marching on??so hlad we can connect like this 

  • Thanks Brenda the specialist is mèeting with oncologist  early Tuesday to plan my treatment schedule.. feeling positive sooner it starts sooner it  ends eventually.?

  • Hi Kazza,

    There is a lot of information but the most important part is that you have all your questions answered. If you are unsure about anything just ask. The members are amazing here and will be able to help you out.

    ~Ann-Marie  

  • Well done on getting through the ikky surgery part. There is no real rush on the chemo thing and it involves your surgical team presenting your case to oncology first, and then they all have a meeting about what will be the best next course of action and what doses etc. They like your wounds to heal nicely before they launch into chemo as chemo will upset the healing process somewhat. I might be three weeks or so?