Forum Discussion
Unicornkisses
8 years agoMember
I did not do well on Taxol, but I am through and out the other side and the side effects are reducing every day.
So even if it is unpleasant for you, know that once you are finished, things can be better.
I had to carefully monitor my temperature as on day 4-5 it started to climb and I ended up in hospital for the first two infusions. (I had it 3 weekly) then the Oncologist had the bright idea of putting me on oral antibiotics on the evening of day 4 and with a couple of Panadol on the two occasions my temp started to rise, I stayed out of hospital.
Neuropathy in my lips and tongue were unpleasant, but went on week 3.
Neuropathy in three middle fingers of both hands but not too bad and still there 6 weeks after last infusion. The Onc said that will take a while to go.
Metallic taste and no taste buds were particularly depressing, again, better on week 3.
My finger nails have turned brown and are weak, so I keep them short. The thumb nails have thickened and gone black in places but that will grow out in time.
Leg weakness was a big issue but is getting better each day.
I had diarrhoea from day 1 for 9 weeks, very demoralising, but now is cleared up.
Dry skin also had to be monitored and moisturising was very important, everywhere!
Dry bleeding nose was better when using saline spray from chemist, and only around week 2-3.
I still have swollen legs and feet but am on Lasix and they are finally starting to look better.
It wasn't a pleasant experience, but the side effects are going a bit more each day.
I think I got more than my Onc expected.
Good luck, I hope you have a better experience, and come on here if you are struggling with something, there will be lots of advice to cope with it.
So even if it is unpleasant for you, know that once you are finished, things can be better.
I had to carefully monitor my temperature as on day 4-5 it started to climb and I ended up in hospital for the first two infusions. (I had it 3 weekly) then the Oncologist had the bright idea of putting me on oral antibiotics on the evening of day 4 and with a couple of Panadol on the two occasions my temp started to rise, I stayed out of hospital.
Neuropathy in my lips and tongue were unpleasant, but went on week 3.
Neuropathy in three middle fingers of both hands but not too bad and still there 6 weeks after last infusion. The Onc said that will take a while to go.
Metallic taste and no taste buds were particularly depressing, again, better on week 3.
My finger nails have turned brown and are weak, so I keep them short. The thumb nails have thickened and gone black in places but that will grow out in time.
Leg weakness was a big issue but is getting better each day.
I had diarrhoea from day 1 for 9 weeks, very demoralising, but now is cleared up.
Dry skin also had to be monitored and moisturising was very important, everywhere!
Dry bleeding nose was better when using saline spray from chemist, and only around week 2-3.
I still have swollen legs and feet but am on Lasix and they are finally starting to look better.
It wasn't a pleasant experience, but the side effects are going a bit more each day.
I think I got more than my Onc expected.
Good luck, I hope you have a better experience, and come on here if you are struggling with something, there will be lots of advice to cope with it.