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Shazinoz's avatar
Shazinoz
Member
13 years ago

Sorry for not being around (hospital)

I just wanted to say sorry for not being around for the past week and a bit, but last Thursday we had a 7pm dash to the ER, when my temped spiked to 38.9C, by the time we got to the ER (about 5 min's down the road) it was 39.9, and by the time the checked my temp, gave me a mask and walked me to the isolations room, it was 40.6C <eek>, so in about 30 mins it jumped to 40.6C.

I was admitted to the hospital with neutropenic septicarmia otherwise known as febrile neutropenia. My neutrophil count was 0.00, all my other white cells were low and my red cells and hemoglobin were also low. I was put straight into isolation and anyone entering my room had to wear a gown, gloves and a mask. I was put on IV antibiotic and had daily blood tests. I was finally allowed homeon Wednesday afternoon after my neutrophil count got up to 1.3. I am on oral antibiotics, and have to stay away from sick people, crowded places etc.

I saw my oncologist yesterday and he is happy with my recovery and my counts have raised enough that I can have my chemo as planned on Monday, but I am now to have a neulasta injection the day after my chemo, to help prevent this heappening again.

There is NO internet access in my hospital, so I was unable to get online and keep in touch.

I have 80 messages to get through as well as heaps of new posts and will slowly get through them, and catch up.

So that has been my fun ? week.

16 Replies

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  • chipmunk's avatar
    chipmunk
    Member
    13 years ago

    Hi Shaz

    Sorry to hear your pain. I hope you are feeling alot better.

    Take it easy and rest up big time.

    Will be thinking of you, love Julie XX

  • chipmunk's avatar
    chipmunk
    Member
    13 years ago

    Hi Shaz

    Sorry to hear your pain. I hope you are feeling alot better.

    Take it easy and rest up big time.

    Will be thinking of you, love Julie XX

  • Shazinoz's avatar
    Shazinoz
    Member
    13 years ago

    Thanx everyone.

    This will be my 4th cycle, and I will only have 2 more after this cycle.

    My oncologist warned me that the neulasta can cause bone pain and gave me extra dexamethasone, as he said this helps a lot with that pain, and told me to take pain killers as needed.

    I felt fine the whole time, just tired and hot.

    I think I had about 12 lots of IV antibiotics, but wasn't given any blood.

    Am on oral antibiotics now, and will be for a week.

    Have my bloods taken AGAIN on monday before chemo (thank goodness those ones are done through the port, becasue my poor right arm is bruised.

    They had troubles finding a vein(s), and removed the IV antibiotics after about 3 days, when they went to change the cannula, but couldn't find a new vein (tried twice and left me all bruised, and the 1st one left me with a big egg on the side of my arm, preventing my elbow area from being used, as it was too swollen, the chemo nrses would not let them use my port, becasue they don't know how to care for it on the wards, they can totally stuff it up, and I need it for my next 3 chemos and the 12 herceptin after that).

    Was on full neutropenic protocols in the hospital, including diet,but now just have to be careful of what Ieat, hot food, hot, cold food cold, not fresh raw foods, everything cooked properly, no food that has been sitting around, and the same things that are not allowed for pregnant women (no soft cheeses, blue cheeses, soft serve ice cream etc etc).

    I had lots of movies on a little hard drive and my laptop, just no internet access.

     

  • Di_BCNA's avatar
    Di_BCNA
    Member
    13 years ago

    Ouch, Shaz! Sorry to hear that.  You must have been feeling pretty awful. Put your feet up over the weekend if you can, havea good read and take it easy.  Di

  • Di_BCNA's avatar
    Di_BCNA
    Member
    13 years ago

    Ouch, Shaz! Sorry to hear that.  You must have been feeling pretty awful. Put your feet up over the weekend if you can, havea good read and take it easy.  Di

  • Tania67's avatar
    Tania67
    Member
    13 years ago

    Hi again,

    I found the neulasta didnt really hurt until 6 days after having it and the pain was my hands and feet and in my pelvic area. But it only lasted a day or so with the pelvic bone area. My hands and feet are still recovering

    xx

  • Tania67's avatar
    Tania67
    Member
    13 years ago

    Hi again,

    I found the neulasta didnt really hurt until 6 days after having it and the pain was my hands and feet and in my pelvic area. But it only lasted a day or so with the pelvic bone area. My hands and feet are still recovering

    xx

  • Pamelamary's avatar
    Pamelamary
    Member
    13 years ago

    Poor you ! Hope the next is easier. Have heard some peple have a bit of pain from the neulasta, so be prepared.

    Best wishes..... Pam