Forum Discussion

Jacqueline's avatar
15 years ago

So Annoying

Hi everyone hope you are all fairing better than me at the moment. Had my mastectomy 3 weeks ago and was just starting to feel sort of normal well not so sore, had it drained last Tuesday and then it built up again and on Monday it was so painful and i had a temp could hardly move then rediscovered lovely drugs (neurofen & panadol) as hubby is on crutches with gout and I am too sore to drive had to wait til yesterday to go and have it drained again,thanks to a lovely neighbour who drove me, but find that it is so painful again today that BC nurse thinks that I may have an infection, so back to the dr's 2 morrow to try and get to the bottom of it, lovely neighbour taking me again. We are a funny pair trying to look after each other at the moment, as I say thank goodness for the drugs or it is just too painful to move.

I go to see the oncolgist about chemo on the 4th April with a possible start on 6-7th. I can't believe where this trip has taken me in the dr report it says that all this came from a report of a 2cm x 2cm cancer and has 4 operations later ended up being 4.50cm with micromatastasis in one lymph node....what a ride.

I know there are some of you out there doing it really tough and i feel for you from the bottom of my heart.

Regards Jacqui

28 Replies

  • Roundabouts and multi-storey carparks were the killers for me! 

  • Hey Jacqui,  to see the latest network posts, visit the 'All posts' page, which is here: http://www.bcna.org.au/node/all/blog/network. ; I've added it to my browser bookmarks so I can get to it easily.

    I've also put a link on the Network homepage, too, so just go there if you loose the link. :)

  • I am thinking that it has to be an infection just a shame that I couldn't get into town today to start on antibiotics, it is painful to even turn over in bed (and I was just able to lie on that side for awhile) so very frustrated, it feels like a real let down I think because everytime after the other ops I would just start to feel good and have to go back for another op and this time thought that I was on the road home and bang, it is depressing and not being able to sleep makes it harder to cope during the day.

    Well am sure all will be ok soon,

    Jacqui

  • Yes we are doing it a bit hard at the moment but as they say there is always someone worse off than you, but I want to be selfish and just do the "pity party" thing at the moment, it is such a let down after having a sore boob etc since 10th Jan after the mastectomy thought I was on my way to feeling good and now I am as sore as when the op was first done 3 weeks ago, so I am at the end of tether today, not sleeping doesn't help the emotions.

    Tomorrow is another day and all will be sorted out and hopefully hubby will be back on deck as well, Friday I hope to write a cheerful message.

    Thanks everyone

    Jacqui

  • Ouch! Jacqui, that doesn't sound like fun at all -- I bet you and your hubby would rather be bonding over something more fun!  :)  But how good that you have such a supportive neighbour??  Hope you get it all sorted soon.

  • sorry to hear you may have an infection,  and the problems its giving you, hopefully they will get it fixed out for you, and you can then get onto the next stage of your journey.  we have women who are at all stages in their journey, so i am sure you will be able to get lots of information and support,  Thanks to Amanda for her comments, this is a scary time for both of you, but make you both register on here for the my journey kit, and the beacon, this has loads of information in a language we can understand, You are lucky to have a good neighbour, but what i would say if possible, is to have someone with you when attending appointment, as i know when i was going through it, i thought i was taking everything in, until my husband repeated things, i never even picked up from the care team. and remember on here there is no stupid questions. Also if you need any help navigating the site just yell out.  Also once you have set up your blog, you have to go into your profile and tick the options you want others to see, as these are all set as private to begin with. feel free to add me to your contacts list.  I am a champion for the site, have been through bc, lumpectomy, chemo, radio and am now on hormone arimidex for 5 years. look forward to speaking to you. take care Moira

  • Thank you for your reply, I could not handle our 4x4 at the moment. I am just hoping that if it is an infection that it doesn't interfer with the healing as they won't do the chemo until it is healed apparently, I wanted to start straight away to get it over and done with but nope 5 weeks was the earliest, that is why I will be so upset if this infection or whatever holds me up, I was told it will probably be 6months course and I had worked out that I should probably finish the same week my second grandchild is born so something to look forward to.

    As to my photography wellll.....I cut heads off very often, oh well maybe not that bad now with digital, mainly I just like taking photos of family and animals, I have a granddaughter which when I see her I tend to be very snap happy and she is 2 but loves posing for me. I wam thinking of doing a course but find it difficult living out of town to go out at night once I get home from work, might be lucky enough to fit it in before I go back to work.

    Have you had a prothesis fitted yet? I am unable to stand the soft berli bra just at the moment so it makes going out difficult for me as I have one fairly large saggy boob and one flat boob, although last week i was able to wear it and even went out to dinner with my work friends, so once this whatever it is(infection ??haematoma??, is under control I will be able to wear it again.

    It will be good to have contact with someone going through the chemo at the same time we can compare notes.

    What do you like taking photos of? I think if I wasn't so sore that I would have been driving by now but at the moment I can't even touch parts of my chest. Did you have the axillary clearance as well?

    I am not real good at navigating this web site yet how did you see my blog...just so I can see other peoples.

    Well off to have some more drugs so I can be able to get my husband some lunch. Hope to talk again soon.

    Kindest regards,

    Jacqui

  • Oh Jacqui I hope its not an infection but if it is they'll get onto it and get it fixed asap!  I too had my mastectomy 3 weeks ago and am jut starting to feel human again - driving a little but boy - I struggle with a round about!  It's certainly a ride alright isn't it? I start chemotherapy next week so we'll be going through this around the same time.  I notice in your hobbies you like photography.  So do I.  What sort of photography do you do?

    HOpe you are feeling better soon,

    Amanda