angea
3 months agoMember
Sad and lonely
Hi everyone. I’m new here, recently diagnosed with high grade DCIS. I had a wide excision to remove the DCIS and margins. Results showed small amounts of invasive cancer in the margins, so a week ag...
Hello,
I have just found the BCNA series podcasts with Dr Tottman that everyone mentioned and I have listened to the first 2 episodes in series one and they have been so helpful to put words and reason to feelings I have experienced like you. I had such a mix of reactions from friends and family - helpful, not helpful, stress inducing, isolating - Dr Tottman helped me understand why I felt isolated and why those that love you most just might 'not get it' or be able to help you as you expected they would.
I will never forget someone I barely knew at work coming up to me at my desk and saying they had heard mutterings about my health and she said "I know you will be fine" but instead of feeling fabulous after her comment I felt even more isolated. Dr Tottman talks about what she calls "positive pressure" that well meaning people might say with the best intent but all it does is make you feel more isolated. I can't say enough that this podcast has helped me a lot. I can't listen to more than one a day as it is also sitting with people discussing cancer but it has made such a difference for me: What You Don't Know Until You Do