Forum Discussion

Catscrapcats's avatar
10 years ago

Radiation Treatment

Hi Ladies, I have just completed my first four treatments of radiation and it's home for the weekend. I was an absolute mess on the first day. I think you ladies refer to it as a meltdown! Lack of sleep, uncertainty and the fact the radiation therapist called me in, got me in a gown told me where to sit, in between 3 blokes obviously waiting for their prostrate treatment (guessing due to the theatre scrub pants they were wearing) and them promptly told me I would have to wait cause she had called me out of turn. Well the tears ran and I struggled not to make a noise. I felt so vulnerable I came close to changing and walking back out! 1/2 hour later she took me in. I was a mess. Thank goodness the other woman helping to do the marking and measuring was so lovely. It only takes 15 mins in that room all up but it was the longest 15 mins of my life. I climbed off that table, nearly ran to the change room, had a bit of a cry, changed and walked out past where my husband was waiting and went out to the car and burst into tears. Now looking back after four days of treatment I feel so silly the way I felt. If only that stupid person who had called me in had been a bit more careful and sympathetic It would have been so much easier. I haven't had that one again yet, and the other male and female therapist have been lovely. Guess three out of four ain't bad!

24 hours after the first treatment I already had a patch of redness the size of the palm of my hand. Bummer! Didn't think it happened so quickly! Had been putting on Moo goo udder cream before treatment started so was a little disappointed. Saw the nurse after second treatment and she recommended I change to Calendula of which there are too brands. One that smells like yeast and the other like apricots. Needless to say I went for apricots and I think it may have reduced the redness a little. She was good and showed me a picture of where I was being radiated, it's amazing the areas it covers! So the the scar area from surgery is warm and red but not too uncomfortable along with under my arm that I will have to watch in the warm weather. Does anyone have a good suggestions for keeping the area under your arm dry and friction free other than not getting too hot as they suggested?

Saw the radiation oncologist yesterday after treatment. I have had a large swelling that I could cup my hand over for some time and that is where the burn is mostly and it's was quite tender to put cream on. She checked and drained 35mls of fluid out of it and that feels more comfortable today. She also prescribed some mild sleeping tablets to take alternate nights or as needed of which I took last night and I feel like a new girl today! She also said you can use whatever cream you want it shouldn't make a difference. So will alternate with the Moo goo and Calendula as the Moo goo seems more moisturising.

All in all, the week has ended not too badly, only five and a bit to go!

My thoughts go out to all those women that are heading in for their first treatment. Hope it is a positive one for you as I'm sure there are lots of great understanding radiation therapists out there that can make that first time so much easier for the not so brave. Regards to all, Maria

18 Replies

  • Hi Pauline, all the best with your journey and which ever way it takes you. It is good to hear that others are experiencing similar things to you and you feel reassured that you are ok. Guess we have to remember we may all experience the same treatment differently too but it helps when everyone shares the tips around. Best wishes Maria

  • Hi Maria, I’m one of the ones who hasn’t started my treatment yet and am so thirsty for information. Thanks so much for your insights. 

    I am having an MRI next week, which will help determine the extent of surgery required for me. I have two small but different growths, one in each breast. I’m still getting my head around all of this! Bought my Moo goo yesterday in preparation for my radiation treatment after reading about it on this amazing, supportive site. I have so much to learn. 

    Enjoy your weekend and thanks again for sharing your experiences. 

    Pauline

  • Thanks Tracey, I'm feeling ok at the moment. It's amazing what a bit of sleep can do.

     

  • Hi Maggier, thanks for your support. The one that came and got me said at the top of her voice in front of about 20 people in the waiting room, "Maria, hi I'm .... I'll be looking after you today before I had a chance to get off the seat. How embarrassing, she could have just called my name and then as we walked down the corridor introduced herself then like the others do. Guess we are feeling so on edge it all seems so much worse. All good at the moment.

    I have sewn specially made strips I put under my bra to soak up moisture in summer as I have been generously gifted in that department and I tend to get sore there if I don't but that's a good idea about under the arm and for drying. Might make up my own towelettes out of flannelette while I am home this weekend. I was surprised how tender it was under my arm when I went to wash. I hate being smelly but not keen to use the crystal type deodorant. So did you find a deodorant that was ok? What did you use for washing under your arm? Have a good weekend. Maria

  • Anonymous's avatar
    Anonymous
    Not applicable

    You must be miserable Maria, that's interesting about the cool flannel, sounds better than the ice now you mention it. The fluid removal might make the difference. Take care, Trace ??????

  • Hi Maria, Catscrapcats is a great handle.  I know exactly where your coming from with the emotional breakdown.  Mine came on my last day.  We are so fragile and it only takes a word to break the veneer.  With my meltdown I actually wrote to my Onco.  OMG I can't believe I did that.  He liked my letter - it was emotionally raw and let him know how we feel at given times.  He added that it takes a letter like this to have the staff re think their jobs as it does become routine for them.  He shared it with them - cringe.

    Anyway, sorry to hear you're having a rough time with the rads.  I was fortunate with mine except for the nipple which still get sore 8 weeks post,  but was told if I did have severe burning to put the moisturizing cream in the fridge before application.  I used MooGoo and thought it great.  Don't forget not to use soap in the shower.  Also I suggest not using a towel but using flannelette to dab yourself dry.    I used scrap flannelette from spotlight under my boobs and at the side of the bra to stop the rub and to absorb sweat during the day.  Hang in there.

  • Hi Tracy, I asked my radiation oncologist about putting a cold flannel on my breast ans she said only if I let it get to room temperature first. She had previously said no cold packs as the skin is so tender from the burns. Coping alright at the moment but see how I get on. My breast is actually still a bit tender from the surgery, hopefully the fluid removal will fix that. Will remember the good ole panadol too. Thanks Maria

  • Anonymous's avatar
    Anonymous
    Not applicable

    Hi Maria, what a horrible experience for you, especially at your first visit. I find that I think that things are coasting along fine, and then someone upsets the master plan, and then you realise how vulnerable you are.  Here's hoping that the alternating creams do the trick for you. I used an ice pack wrapped in a tea towel on the radiated area in the evenings, and that helped to cool it down a bit, and made it a bit more comfortable of a night time. I also took a couple of panadol before I went to bed, and that helped too. I'm feeling for you and sending you a big cuddle, Trace ??????