Forum Discussion
Janiot
11 years agoMember
Radiation planning appointment 23 September 2015
I felt the whirlwind again..met 2-3 technicians who placed, inked, measured CT'd and then took photos and tattooed me??
As ever my husband was patiently waiting for me in the waiting room- I don't know how I would cope with everything without him??
Then the nurse went through skin care and briefly orientated us to the department and advised of their routine when coming in for treatment.
Radiotherapy will commence on 14th October- 33 sessions, consultant mentioned I may need to be re CT'd before the 5 boost to nipple sessions.
Nurse review day will be Friday and Dr review day will be Monday or Wednesday - depending on whether my treatment appointment is in the morning or the afternoon.
I'm very lucky - I only live 5 minutes away from the hospital and will be able to take sick leave from 19th October until 30th December 2015 or longer if necessary??
Meanwhile I have to work out what I can wear to my son's wedding on 14th November...
Wishing all the best to everyone - wherever you are in your journey??
11 Replies
- JaniotMember
Thank you - I'm hoping my local chemist is still a stockist - I will check early this week as I start therapy on Wednesday??
- AnonymousNot applicable
Hi Janoit, just google moo goo suppliers. They have a website that lets you know where your nearest supplier is in your area. Moo Goo has about 5 different types of cream. The right one to get is udder cream, it's great and soaks right into your skin. Hope that helps, Trace ????
- KazziMember
Hi janoit,
I found the whole planning radiotherapy Ct scan thing so bizarre. Being the only person half naked in a room, hands locked into stirrups, with people all talking and texts marking, tattooing as well. I have a mastectomy scar so felt a bit self conscious. I tried to lie and meditate and pretend I wasn't really there!! LOL
My radiation oncologist also recommended moogoo. They have a website to buy online and also a list of stockists in your area. I found some chemists and health food stores stock the brand.
I started my first rads session yesterday. It took a lot less time than the planning session. So that's one down, 24 to go.
That's so good you're so close to the hospital. Hope you find something nice for your son's wedding. Take someone with you to help pick something out.
Take care,
Karen xx
- JaniotMember
Hi Maria
I think Canberra is a little slower than Adelaide re starting- we only have one hospital that has 4 machines- I thought I would be starting sooner.
yes a friend will take me shopping for a dress- she has been a fantastic support for me since my surgery in August??
I didn't think to take husband in - not sure why- he did feel unwell being present formy third aspiration of a seroma a couple of weeks ago mind??
As son is getting married in Jindabyne I have booked a couple of nights at Rydges on Lake Jindabyne as a treat- it will be mid way through treatment??
- JaniotMember
Hi Lisa
Not a lot of advise really- more what to avoid..deodorants, perfume etc where treatment area will be..they seem to recommend Aqueous cream to start plus saline soaks later and then just depends "how the skin reacts"...
Jan
- JaniotMember
Hi Gillian
Where do I get Moogoo from? I live in Canbera
Jan
- Gillian2069Member
Yes, I finished 30 sessions at the end of August.
I felt I was in safe hands. The people and processes were very professional.
I slathered on the recommended moisturiser (Moo Goo) and added some lanolin as well. My skin held up really well (except the hollow under the collar bone peeled a little - probably because I sometimes missed it with the moisturiser).
Hope it all goes smoothly for you.
Love and hugs
Gillian
- lisboyMember
Hi Janiot,
i just went through exactly the same thing yesterday. Measured,marked, cat scan and tattoo's! I will be having 6 weeks radiotherapy commencing 5th October. I didn't meet the nurses only the techs and my radio oncologist came in to see me as well. I will be asking the nurses all about skin care as that really worries me. I have two small areas on my reconstruction(I have an expander in following mastectomy) that have broken down a little as it was over stretched. The Drs aren't concerned though! I would be interested to know what advice you got?
Good luck for the next few weeks
Lisa
- CatscrapcatsMember
Janoit, I forgot to say. I asked if my husband could come in while they did the mark up for the CT scan. They were only too happy to have him there except for the 2 min CT scan. It was very reassuring as you feel very vulnerable while you have different ones running in and out doing things to and checking your breast etc. He also got to see what goes on saving me repeating everything. Maria
- CatscrapcatsMember
Hi Janoit, I start my radiotherapy on the 6th, week before you. Like you my first child to be married did so 10 days after my surgery. I was lucky I had my dress already picked out before my diagnosis. Not sure I would have felt like it afterwards so hope you have someone to take you and help you out so it's not so tiring. I live 2 3/4 hours away from the radiation centre so I will be bringing lots of things to do while I stay in Adelaide at the Cancer Council Lodge. Good luck and keep in touch. Maria