Radiation burns

Thanks Chris but it's a no, no for me. Look into Indul-3 Carbonole also. Helps to metabilise oestrogen, another back up, have a google? Thanks anyway. Good luck on your continuing journey.

Hi Jacqueline, just wondering if you have tried fish oil and Lyprinol ( from the green lipped mussel )? I felt crippled and old when I first went on Femara. Getting up from sitting, and first thing in the morning, and even rolling over in bed were all very awkward, and I felt 100, not the 53 years I was. I have been taking these products now for several months, and they have made a real difference. It hasn't stopped all the stiffness completely, but I am much better than before. When I had to cease these supplements for a month for reconstructive surgery, I realised how much of a difference they actually had made, because all the pain came back quickly. I will continue to take these for the whole time I will be on femara. Good luck. Love Chris xx

Thanks to you all for your thoughts, it just sucks doesn't it! My doc has now given me a week off work and told me to do NOTHING but read, watch movies and sleep, which I had no trouble doing all day yesterday but of course was awake half the night! lol. They bandaged me with intrasite gel but that stuck through the night! Ouch. Anyway, I keep telling myself after reading some other stories my problems are minor and I will get through them and out the other side - someday.

Funny thing though - at the start of all this I was all gung-ho for reconstruction asap, now I think I might run for my life if the word surgery is even mentioned to me. Anyone else though of /thinking of / or done this?

Cheers to us all, Vicki

I hope you are getting some relief from your burns after Rads and you were able to call your Radiation Nurses to help you out.  Even though your treatment has finished they should be still available to you for help. 

I had a bad time with my collarbone after No.5 (30 in total) and the nurses put solugel on and dressed each day.  As soon as they stopped zapping that area I could put zinc& castor oil cream on it.  Within a week the wound healed and my skin had grown back.  I put it on a thin layer twice a day and put a dressing on to keep it moist.  When I showered I didn't wash/scrub the area, just splashed some water on it and patted dry.  It will go all mankie under the dressing, but that is good.  To get it off the skin (to start the process again) use olive oil on soft cloth and gently run over wound.    Maybe check with your nurses first and don't use it if you are alergic to zinc sunscreen.

Good Luck

Rach

hi vicki. I to suffered very badly with radiation blistering its shocking isnt it? i was seeing a radiation nurse after every session.She gave me solugel and wrapped me up in glad wrap to keep it moist. id c hange it 3 times a day.I was also giuen strong painkillers at week 5. good luck demand to see the nurse and get treated its their job to look after you. annie x

I think you should be seeing your radiation/onc team more often-like every few days if your chest is weeping and under arm infected. If there's no improvement after 2 weeks on antibiotics then maybe you need a different one. Perhaps your GP can take a swab of the infection and send it off. I think you have to be careful about what you put on an open/cracked/infected area - not creams etc. Your team should be advising you Vicki - make a big noise! In the meantime maybe a warm salt bath might be soothing.It also has a mild antiseptic effect.It's natural and can't hurt but check with your nurse. I hope you are on the mend soon cos it's very depressing when your recovery is so delayed.

                                                    Tonya xx