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robsue's avatar
robsue
Member
15 years ago

radaition starts monday

 hi all hope everyone is well, just a quick question can anyone tell me , about radation  l hear you get tired, may get swelling??? anything else or any tips that could help , l start on monday in melbourne so life will be very different for awhile without hubby and kids.

regards robsue

22 Replies

  • Hi Robsue,

    Hope all goes well with your treatment.  It's a shame you will be away from hubby and the kids, but the time will pass quickly.

    I chose to travel daily to get my radiation, and most of the time I drove myself (naughty I know), but it puts such a big drain on everyone I wanted to try and relieve some of the travelling agony on my partner.  It was a 2 hour return trip everyday and the treatment itself took 10 mins maximum.  I had a lot of burning, originally supposed to have 30 sessions, but was cut back to 25 'cause my skin just couldnt take anymore.

    Dont be alarmed though, it really didnt hurt as the area was numb from surgery anyway.  The nurses check you every week, or more if necessary and tell you how to look after your skin.  The burns get worse, even when radiation is finished, as radiation effects continue after treatment for approx 10 days.  If it gets really bad, they give you a cream with lignocaine mixed in, which helps.  I had to apply this several times a day and wrap the area in glad glad (not a good look - haha).

    Like everything on this journey, we do get through it.  You will be extremely tired - so listen to your body - have lots of nanna naps, do everything they tell you regarding your skin maintenance and you should be ok.  I actually got blood poisoning from my radiation burns, but I pulled through this OK.  Like I said, we take what they throw at us and we bounce right back.  Good luck

    Di  :)

  • hi there, radiotherapy i felt was much easier than chemo, i was advised by the radiologists to use sorbolene, i showered with this, then after radio slapped some more on, i had radio for 6 weeks (mon-fri), and was fine about week 3 I started getting tired, but soon learn to lie down and normally i found 20mins or so i was fine again, but it is very tiring so listen to your body which i am sure you have had to learn to do through this journey already.  As for burning i didn't have much a bit red, but all was good, i was also away from family (my husband was there part of the time), but i found staying in the cancer council hotel (adelaide) was a help, as there are others going through the same thing, and found the staff and everyone else friendly. good luck and let us know how you are going. There is a scheme "stay in touch through nbocc", which allows you and your family to stay in touch while you are away with laptops and skype,which i believe they provide.  have a look on the nbocc website for information. Good luck and Take Care Moira

  • Sorry I cant help you I only had chemo with No rads but wanted to wish you luck especially as you are going to be away from hubby and the kids.

    Take care.

     

    Tanya

  • Sorry I cant help you I only had chemo with No rads but wanted to wish you luck especially as you are going to be away from hubby and the kids.

    Take care.

     

    Tanya