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Livvi1's avatar
Livvi1
Member
11 years ago

Questions post op

 

Hello ladies, 

 

I hope everyone has had a lovely, restful christmas with family and friends.

 

I am 12 days past my right complete skin sparing mastectomy and left prophylatic skin sparing mastecomy with immediate diep reconstruction. I managed to make it out of hospital four days before xmas day and I was so grateful to be home with my children and family. Still I find myself feeling frustrated, frightened, flat, snappy and anxious often. I feel guilty for this but I find myself willing the days away, longing to be a month or more down the track already. 

 

My new breasts are atleast a size larger than originals (I had plenty of extra belly to spare) and feel heavy and swollen. I have found my wireless bras great but still doesn't feel enough and I am often supporting them with my hands also as I shuffle around. I have minor pains that come and go and still getting bruises of different sizes/shapes and colours coming and going.

 

Anyway I have a few questions and was hoping that anyone that has been through this could give me some advise please.

 

1. When did the swelling/heavy feeling in your newly made breasts go down, they feel like a set of watermelons at the moment! Did they loose a little size once the swelling was gone?

2.How long was it until you felt comfortable to sneeze/cough?? I have managed to pick up a cold and a sneeze yesterday was painful still.

3.When were you able to drive?

4. How long did you wear your binder for?

5. When were you able to take on light/normal duties around the home? 

6. How long was it before you could sleep normally in bed. I am sleeping on a recliner and although it's OK, my neck is sore.

7. I'm just starting to notice the tight/pulling sensation in my stomach has increased. How long can this last? I imagine for quite some time.

 

I'm a naturally anxious person and have always suffered from panic attacks. I've had quite a few in the week I've been home and find I often wake up having them during the night. Is this all normal?

 

I'm sure I'll have a new set of questions in the next few weeks. I am very grateful for any help/advice you might have. Thank you.

6 Replies

  • Hi Rowdy,

    Great to hear from you, thanks for your message. 

    Had my first post op app last monday and despite all my worries plastics doctor said it's all perfectly normal and looks good. I have alot of bruising on the right breast and it's been worrying me a bit but they think it's fine so I'm happy! Breasts still feel swollen but not quite as bad as last week.

    Next monday will be my third week since my operation. I haven't been quite as tired as I was last week but I'm still not able to do much. I've tried a few small walks and they've been OK but my back gets sore pretty quickly and my stomach feels stretched. 

    It's been hard recovering over the school holidays, having the kids home and not being able to do all the things we are usually out doing. Everyone is bored!

    I'm really pleased that your new nipple has turned out so well. I haven't thought much about that yet but I guess in a few months I will be. 

    I've been keeping a bit of journal and writing things down most days, it's helped.

    Wishing you a happy new year that is stress free and relaxed.

    Take care xox

     

  • Hello Jane,

    Thanks heaps for all that helpful information. After hospital my first aim was to get home, but once I was home you feel quite alone with it all and the anxiety sets in with every pain, lump, bump and bruise. I had my first post op app last monday and despite all my worries (my right breast is quite bruised) the plastics doctor assured me it was all very normal and all looked good. I've picked up a bit since then. She also told me that the binder needs to be worn for 6 weeks.

    Next monday it will be three weeks since my op. I have done a few small walks outside this week but it doesn't take long for my back to ache and my stomach to feel stretched and sore. I'm still getting very tired but not as bad as I was last week. Slowly but surely!

    Thank you again for your help, take care Olivia :) x

  • Thanks Karen, I do have a lovely breast care nurse and she has been great. She has called a few times since I've come out and has been very helpful. I had my first post op app last monday and despite all my worries about bruising etc the plastics doc said everything looked great and I wouldn't need to see them for another month if I didn't want to. I've picked up a bit since then. I do hate looking at all the bruising though, every ache,pain, bruise makes me anxious. Thanks for all your lovely messages, it really helps. Take care xox

  • Hi hope you are feeling good, it does take a long time to feel normal again.

    I had mastectomy and tramflap reconstuction in August.

    I wore the binder for 6 weeks day and night uncomfortable but got used to it, was nice when I could stand up straight

    Sneezing and coughing not pleasant for a week.

    The tummy feels numb alot, told it will settle but will always feel strange.

    Driving 6 weeks

    Sleeping slept on my back with pillows under my legs for first 6 weeks to stop pulling on tummy.

    Housework didn't do any, husband did the lot.

    Boobs swollen for a while, was strange as I had 1 perky boob and 1 saggy had to remember to put in bra.

    In November I had a nipple put on my new boob and my other boob reduced and made perky. My boobs still swollen and tender at times. Waiting until I can go out and buy new bras, at the moment just wearing ahh bras, only thing I can tolerate as scarring still tender My new nippe looks amazing.

    Hope you are feeling good take it 1 day at a time, I'm waiting for the new year and a new normal Happy new year and roll on 2015xx.

     

     

     

  • Hi Livvie,

    You've been through such a huge operation that I'm not surprised you are feeling anxious and overwhelmed :-) You are actually doing really well considering how recently you had your surgery. I can absolutely understand the frustration of wanting to feel better and stronger as soon as you can (particularly when you  have a young family) but you need to remember that your body has just been through an enormous shock and it does take time to heal, both physically and emotionally.

    I had a single mastectomy in 2012 and delayed (2yrs) DIEP flap reconstruction this year and while I am glad I went down the reconstruction route, the DIEP operation did knock me about and it was a good 6 weeks recovery period (although I did have a few complications, including a couple of infected areas on my tummy scar and underneath the new breast, as well as a seroma that needed to be drained).

    Following the DIEP op, I was told not to lift anything heavier than a half filled kettle for the first few weeks and was able to gradually do some light housework around 4-6 weeks. The heavier stuff (like vacuuming, changing beds etc) had to wait another week or two, so hubby had to pitch in and get those jobs done. 

    In those first few weeks I also made sure I did the exercises I was given by the hospital physio and did some walking to help with mobility. I slept in my bed when I got out of hospital but was elevated with support pillows and had a pillow tucked under my knees to support my tummy area. I think that lasted about a week or so before I felt ready to lie down straighter. I didn't have a binder on for too long, perhaps a couple of weeks, but I know other ladies have had theirs on for around 6 weeks, depends on the surgeon I guess.

    It did take about 4 weeks for my breast to feel less swollen and I found my aah bras were quite good supports as I couldn't cope with anything that rubbed underneath. I'm now 8 months down the track and my new breast has probably lost around 1 cup size, so I recently had a breast lift on the remaining breast to provide better symmetry. Now I have matching B cups!

     Anyway, just want to wish you all the best with your recovery and let you know that you will get there, just be kind to yourself along the way :-) Jane x

     

  • I can't help on the mastectomy questions front but I can tell you that the anxiety is quite natural. You are going through a hell of a lot, lots of unknowns, and it is scary. I had to up my meds as well as seeing a counsellor to help. Try to acknowledge the feelings and let yourself go through them. You will find that you will probably have teary times to. It's perfectly understandable. Be kind to yourself and good luck with your treatment. Love Karen xox