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HelenD's avatar
HelenD
Member
13 years ago

Practical issues with mastectomy

I had a mastectomy, right side. Whilst I have been furnished with a lot of information and support about hair loss and makeup etc (thank you Look Good, Feel Better), I feel that not enough guidance and support is provided about the actual loss of the breast and associated lymph node surgery. I had no idea how difficult it would be adapting to having only one breast, and the pain and swelling in my armpit area and arm. I sometimes wish they'd taken both breasts off! The practical issues of not being able to wear a bra, discomfort and numbness in my arm, and not being able to wear the clothes I have.

I've accepted losing my breast, but it has been very hard adapting to the physical and practical loss. Sometimes I feel like such a freak, constantly trying to make my breast area look 'normal' with the use of the soft prosthesis supplied.  I was referred to, and obtained a silicone prosthesis, but I still can't wear it as I've put on weight and the bras supplied are already too tight. I still can't cope with the weight of it yet due to sensitivity. Because of swelling and weight gain due to chemo, I've had to go out and buy bigger size button up shirts and skirts. I live in Brisbane and it's been difficult in the heat, not being able to wear cool tops. It's even difficult being around non family members/visitors and being able to just be 'myself'. I know they are sympathetic but it's still awkward having a missing breast. Getting my face looking something like normal is easy, but getting dressed to go to the shops or to work usually ends up in tears and frustration.

I know there's probably nothing practical anyone can do, but I feel it's an area of support that's completely overlooked. 

12 Replies

  • Hi Vee

    Yes it's hard to describe the arm/armpit sensations to my hubby and others. Mind you I still have areas in my armpit and upper arm that have no feeling. Since it's nearly 4 months since my last surgery I'm starting to doubt I'll ever get the feeling back!  I also don't think I'll be able to shave that underarm for a while unless the swelling goes down, my body in that area seems pretty mutilated and out of shape. I avoided the porta cath and only have only chemo left tomorrow, yay!. The Berlei bra I got was too tight when I got it and I've no hope of fitting into it now. I'm down to wearing a mastectomy bra (with strap extender) I bought on Ebay! It's getting pretty worn out now. Chicks in Pink provided a voucher for 2 lovely bras when I got my prosthesis but as I mentioned, I'm too bloated up to wear them.

    I too try and see the lighter side of things, but some days it does get me down. I just want to get back to normal! Whatever normal will be for me in the future.

    You take care and have a wonderful Christmas and here's hoping 2013 is a better year for us.

    Helen

  • Hi HelenD,

    I know exactly how you feel. I had a mastectomy on my right breast on the 17th December and I'm over it! My armpit feels like someone is constantly rubbing it with sandpaper or steel wool and my left shoulder is tender from insertion of the porta cath. I didn't receive the soft form with my mastectomy bra, so really takes effort to get out of the house knowing I have to stuff an ahh bra with stockings!!!

    I've read somewhere that wearing a soft cotton singlet under your bra can help with the discomfort. I don't know if this helps? I am in Brisbane too so totally understand the heat thing. Isn't it a weird feeling only sweating under one breast!!!

    I try and have a laugh at all the stupid things that are happening to us, sure as eggs beats crying about it, though I have had my fair share of doing that too.

    Chin up girl and know that there is always someone here that has "been there, done that".

    Hope you have a great Christmas.

    Vee