Forum Discussion

kmakm's avatar
kmakm
Member
8 years ago

Post Chemo Life

This is my first week clear of the three week chemo cycle. I am officially finished. Next up for me is a bi-lateral mastectomy and reconstruction in three weeks

Everyday this week I have felt my anxiety increasing. I can't identify any specific reason. It's really interfering in my day to day life, sucking out the enjoyment of activities that have previously been pleasurable. It's colouring every waking minute.

I don't sleep well at all. It's over four months since I had a decent night's sleep. I'm almost looking forward to the 8 - 10 hours on the operating table because I'll be 'asleep' for more than 3 - 4 hours straight. My eyes have been twitching for weeks and weeks.

I've just noticed tonight that three more fingernails have started to discolour. My nails and fingertips are so sore, doing basic household chores hurt. I have to wear gloves to do a lot of them. Folding laundry is like rubbing my hands on sandpaper. Some of my fingertips are starting to feel a bit numb. Several of my toes are turning dark brown and are sore as well.

The chemo induced menopause is awful. My skin is terribly dry. Over the last few days my knees have started to ache when I move them after I've been still for a while. Is that menopause? Could the anxiety be menopause related? The f*****g hot flushes are making me miserable. Mostly I have them for 12 hours a day, from about 8pm to 8am, but today, all day as well. It's bloody distressing. And I hate the freezing chills that often follow. I am never a comfortable temperature anymore. I used to love going to bed. Now I enter my bedroom and look at my bed like it's a battlefield.

And now that chemo is over, I've had to return to 'normal duties' and find my brain is comprehensively unable to process the multi-tentacled beast that is my seven person two dog household. I am making mistakes.

This is basically a big whinge, sorry. I suppose I just have to pull up my big girl undies to the armpits and get on with it. I've treated my BC to give me the best chance of a long life, and these side effects are the price I have to pay. My oncologist is sympathetic but disinterested. Do I work with my GP to try to manage these issues? I am seeing a counsellor for the emotion stuff, I hope that starts helping soon.

I'm interested to hear how other's immediate post chemo weeks were. Reassurance I suppose!

33 Replies

  • You've not forgotten anything @kmakm until you've decorated your child's birthday cake with the wrong age... Seriously, talk to your GP although I think the onc is being paid to be interested.  And recognise that surgery is something that is going to cause anxiety and while you need to try to mitigate it's effects, give yourself permission to be feeling it.
  • @primek Thanks Kath. I'll make an appointment to see the GP when the kids are back at school.

  • Hopefully in the next few weeks you will start to have a clearer brain...but it took me months to start remembering things. I had to keep a diary and tick stuff off. It was the only way to remember things. I needed frequent rests...for up to 6 months. It's certainly not over in a few weeks.
    I really think it's time to talk to your GP about the ongoing sleep issues. Sleep deprivation is like being drunk. Your reflexes and decision making are impaired. Emotions are more labile. And please please ensure you have your thyroid function tested.
    I did have some counselling sessions which helped. I still have some sleep difficulties now when stressed. I feel stressed much more easily.
    Practising minfulness techniques, breathing techniques can help.
    Using apps such as "calm" you might find very beneficial.
    And yes...you will at least get some sleep during surgery and subsequent pain relief. 
    Take care. Kath x