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Kara74's avatar
Kara74
Member
11 years ago

Phyllodes tumour news

I've just been diagnosed with a phyllodes tumour in my right breast and feel like my world has come crashing down. I had surgery to have it removed (what was thought to be a fibroadenoma) but came back with a 60mm x 65mm x 50mm tumour. I now need to go in next week for further surgery to remove a bigger margin. My doctor believes that this should be sufficient treatment, with close monitoring for life, although am wondering about other people experiences and reccomendations. Thanks Kara

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  • Roo1's avatar
    Roo1
    Member
    11 years ago

    Hi Kara74,

    I was recently diagnosed and have been successfully treated for a malignant Phyllodes tumour. 

    The tumour grew very quickly. My consultant informed me that surgery was the most effective approach, as Phyllodes are not typically known to respond to other treatments. It was approx. 50mm when it was removed. 

    My initial lumpectomy did not achieve clear margins so I opted for a full mastectomy. During this time and since, I have had full body scans to check if it had spread. 

    My very good news is that the latter surgery eradicated the tumour completely and the scans were negative. 

    My consultant has declared me completely free of cancer and therefore I will now only have annual mamograms on the other side.

    It has been a rocky ride and I'm still coming to terms with my lucky escape.

    The key thing for you is to stay positive and open-minded, as there's an extremely good chance you'll be okay. Malignant Phylodes are very rare and the percentage that mastatise are equally low.

    My best wishes.