Forum Discussion
Paget's disease
I was diagnosed with Paget's disease of the nipple eight months after diagnosing myself through the internet. Misdiagnosed first time round.
I had surgery followed by 7 weeks of radiotherapy.
I w...
Hi Zoffiel . I havent had a diagnosis but was tested for Pagets . I have an auto immune disease which is rare and has a high tumour rate with it . So I have been turned inside out over 30 years to make sure I don't have one . Currently its the fact I wasnt able to get a second opinion on my breast when it all happened and the symptoms continued . I have had to make enquiries again as the appearance is worse . I dont want tests and specialists I would rather not be in this position but no one seems to have knowledge of what I was told was "suspected Pagets Disease of the Nipple ". I hope you are right and thanks for interest .