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Pocket_Rocket's avatar
10 years ago

Ovaries...to keep or not to keep that is the question??

Hi All

I just wanted to get some personal experiences, pros/cons to having an oophorectomy. My initial thoughts was rip the suckers out, I no longer need them & we at least know then that I can't produce my own oestrogen...but now after researching a little not sure if this is the right choice. If anyone has theown personal experiences to share that would be much appreciated. Thanks in advance. Pocket Rocket. Xcx

14 Replies

  • Waving Ladies..  I pondered this for quite a few years.. I was PR+ and ER- (almost) and  I was crazy enough to use Dr Google..  beeee bahhh..  i was petrified!!..  When I finally got to it..   I actually found the op quite ok..  I did a little to much too early and paid the price for a few days but basically up and about really quickly.  As treatment had already set me down the path of hot flushes, mood stuff etc, it did not really seem to make it worse.

    Overall I sit here now and wonder why I put it off for so long..

    This is just me of course..  It is something that oncologists see as helpful for ER+ and PR+..  remember that adrenal glands and fat cells also produce hormones and that is why even after ovaries are gone there may be a suggestion of something like femara alike..

    removing the ovaries can be just another tool in the box to assist with the 'what if' that is BC and the choice you make at the time is always the right one as the future is not known..  For each of you, ask lots of questions of your medical team, be guided by them and feel comfortable with your decision.

    With hindsight, would I have changed my 'no thanks' decision back in 2008?  no, I would not and my gyno (who  is also an Onc) agrees even though I am now living with SBC (just dumb luck really!!).  At that time the decision was right for me..  and in 2013 when they left it was the right one then..

    Hope this helps out
    Cheers, Sharon (Pink66)

  • Hi Pocket Rocket, 

    What does your oncologist suggest?  From our conversations they will factor in age,  hormone receptors etc. If they are recommending it then I'd seriously consider it. 

    I had a total laprascopic hysterectomy + bilateral salpingo-oophorectomy  4 weeks ago and my personal experience has been really positive. The surgery was a breeze, I was back at work 10 days later. My menopause symptoms have improved and the change from Tamoxifen to Arimidex was fairly easy.  I'm sure there are others who have had totally different experiences but just wanted to let you know it can be a good thing. 

    Good luck with your decision,  Jen

  • Hi,

    I'm also pondering this.  I see the gynie onco next week to discuss so will let you know what he says!

    Louise

  • Hi Pocket Rocket, can't offer any advice or help on this,as it's a question I'm also pondering. I've had my last chemo today, so I think I'm going to leave the decision for a while, at least until after surgery & radiotherapy, to see if I get any more periods. I haven't had one now for about 10 weeks, & will be interested to see if they return over the next few months.

    Take care, Lyn