Hi Peta, sorry you are having a rough time of it. Like you "the system" has let me down. The day I found a new lump none of the emergency numbers given to me even answered their phone let alone helped. Next time I'm going straight to my GP, she always helps. If you're having pain, chat to your GP for help. Mine put me on painkillers and kept changing them till we found the right one. I guess your GP knows you better than the hospital system. They should be receiving updates from your specialist anyway, so maybe the GP can answer your questions too? Don't give up Peta, I know it can be really crappy, but we're in this with you Tracey??