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ScorpionQueen's avatar
ScorpionQueen
Member
10 years ago

One, two, Cha, Cha, Cha!

UNDER CONSTRUCTION!

Day 19 - fourth fill.

What a crappy night's sleep! I

I missed out on my nap yesterday....don't know why....time just got away from me and before I knew it, it was a bit late to have one.

As soon as I lay down in bed, the litlle gremlins holding sparklers decided it was party time! My toes were on fire....I couldn't even bear the sheets to touch them and my right leg decided it would do the Cha Cha all by itself!

With no nap on board, maybe I was over tired? Who bloody knows!

Everyone has held a sparkler at some point in their life....they're pretty, you can wirte your name in the air with them....you can hear them sizzling away.....

That's the best way to describe the feeling of the nerve pain I had. Imagine that sizzling sound turned into a FEELING and BAM! you got what nerve pain feels like!

Since my last chemo rounds of the Demonic Diva, Docetaxel, my toes, feet, fingertips and hands have suffered. The peeling has settled on my feet somewhat, thanks to the never ending application of creams....but the preipheral neuropathy remains.

It has been quite bearable over the last month and I thought, Yay! maybe this will go away.........But no, once again it has lulled me into a false sense of security only to ambush me in the dark of night.

I lay there in the dark, with my toes on fire and my leg flicking from one side to another.....one, two , cha, cha ,cha......bloody hell....I also now have a new neuropathy that runs along side my right knee ( I have to see the Dr about this!) and I'm sure that wasn't helping either! ......Hubby even complained this time......so I got up....

I checked my feet and sure enough they were red raw....I emptied yet another tube of cream and covered my feet with it....it did soothe the burning, which made it a little more bearable.....after a midnight snack of Weet Bix (yuck, I know, but it's a staple for me since this stupid disease interrupted my life) and by then I was due for more Panandol, off to bed I went again........checked the time....2am......FINALLY, sleep......

The alarm woke me at 5am! Hit snooze a few times, hubby went to work. Fell back into that deep sleep that you go into when you haven't had a good night's rest....you know the one you wake up from wondering what time, year and day it is......well it was only 7am....

My usual morning routine ensued....then it was time to go to my appointents for today. First up Physio.....

After getting clearance from the surgeon last week to get on with exercises, we set about putting a plan together.....first priority though is to get my arm movement back so I'm ready for radiotherapy. .... I have to be able to hold my arm above my head for 20 mins at each rads session....so a massage for 15 mins to work on the cording in my right armpit and down the length of my arm was today's physio......armed with a list of exercises to do each day, onto my next appointment..

The Radiation Oncologist.....the Professor is on holiday, so I saw another of his colleagues.....she went through all the details again....the pros and cons and got me to lay on the table the way I would have to when having rads, to show me how far I have to get my arm back....It's not as far as I thought, but I still have a lot of work to do to be able to get it where it should be!.......consent forms signed.....a tentative booking has been made for the 30/8.

I say tentative because I'm hoping my fills will be done by then and if they aren't well I can change it. On this day I will have what's called a CT Simulation. It's where they take a CT scan of the area to be treated, gather alll the data needed to work out how much radiation and mark me with tiny dot tattoos to point where the beams will be directed.....this all going to plan, I will the commence radiotherapy two weeks after.......it takes that long for the team to get my treatment analysed and ready for me.......

Another day of information....another step closer to this nightmare ending.....came away from both appointments feeling good.

Well that was my day....now with a Jamie Oliver Lamb Shoulder slow roasting in the oven, I WILL have my nap and hopefully that will help me get a better night's rest tonight.

Stay warm everyone.......sooooo cold today!

9 Replies

  • SoldierCrab's avatar
    SoldierCrab
    Member
    10 years ago

    HI Scorpionqueen will message you tonight in full as I am off to a day of appointments for my mum... 

    have a great day 

    Alice 

     

  • ScorpionQueen's avatar
    ScorpionQueen
    Member
    10 years ago

    Hi Soldier Crab!

    Thankyou for your advice on my posts! 

    I had my stockings on and had to take them off...they annoyed my toes! the same ended up happening oin the hosptial too!

    I am interested in what effects the crystal has....i carry crystals and have them throughout my home....but I never thought to use them during my treatment....I guess my spiritual side has gone abot awol during this time!

    You can message me with the information if you like.....

    Cheers!

  • LITHGOW1950's avatar
    LITHGOW1950
    Member
    10 years ago

    Damn.  I just wrote a long post and lost it. O well.

    I love reading your post, you write so well.

    As one of the ladies suggested I also found the Dawn Fraser Revital excellent. I developed "restless legs" and it eliminated that within weeks of using it. It also helped with my numb toes, which really weren't too bad but somehow made them feel a bit better. 

    Funny tattoo  story.  I went and had my first massage in 12 months.  The massuse said I had  a black spot under my arm. At first I didn't know what it was, until it hit me that it was one of my tattoos.  She said she thought it was a black head!!! She thought it strange because she had never seen a black head under someone's arm before. 

    Hope you are sleeping a heap better.

    Anne-Marie ??

  • Brenda5's avatar
    Brenda5
    Member
    10 years ago

    Its awful not to have a good restful sleep and annoying. I suppose through life we all have a few crappy nights but with this bc treatment you end up with a whole lot more of them. Just hang in there, it gets better.

  • Mira's avatar
    Mira
    Member
    10 years ago

    Haha, you should!! I love that we can see the humour in it all.  That's what got me through :)

  • ScorpionQueen's avatar
    ScorpionQueen
    Member
    10 years ago

    Lol! I have 14 tattoos already... I am thinking I'll continue getting 'dots'  and maybe make a constalation of my star  sign out of it! 

     

     

     

  • SoldierCrab's avatar
    SoldierCrab
    Member
    10 years ago

    hi Tracy me again 

    OK try putting your lovely support knee highs on from surgery if you have them.... they helped stop the pain in the feet for me...

    I have also gotten a Dawn fraser revital machine for circulation it helps me heaps   I got to trial mine for a week before buying it helps with the nerve pain and the neuropathy in my feet...

    Ask your Oncologist  if you can do  a foot soak with epsom salts before bed. 

    I use Clear Quartz Crystals paper taped to my chest wall to manage pain instead of drugs...

    I have also found dry brushing helps me with the nerve pain in back and chest wall now but I am nearly at my 4 year anniversary since diagnosis. 

    Hope this helps 

     

  • prudencerose's avatar
    prudencerose
    Member
    10 years ago

    Hi there! 

    I have just been introduced to the devil docetaxel because paclitaxel was causing neuropathy. What a treasure this drug is ! - NOT!!! I only have to have two rounds thankfully because the first has flattened me! NO taste, numb tongue, lips and face; a burning hand, aches, pains; sore fingers: feel like crap!

    i asked for ladybirds for my tats but nobody took me up on it! ??

    This is a rough journey and this site helps us know that we are not alone. Nobody really can understand unless they have been through the highs and lows. 

    Keep battling everyone! Xx

  • Mira's avatar
    Mira
    Member
    10 years ago

    Hi,

    I hope you have a better nights sleep tonight.  I remember doing the radiation simulation, I called it target practise.  For some reason it tickled my funnybone and I couldn't stop giggling the whole time they were doing it.  When they explained the tattoo to me I asked them if they could do a teddy bear instead of a dot.  To his credit the doctor looked around at everyone in the room and asked if anyone was artistic enough to do it, but the other staff just backed away from me.  It was hilarious!

    Enjoy your lamb roast, it sounds delicious.