Forum Discussion
One of those weeks
I had my 18mnth oncology review yesterday. Unfortunately my regular oncologist was away and I ended up spending three hours in the car to see a 14 year old minion. I wouldn't have bothered going if I knew that was going to happen. I really wanted to discuss the AI drugs as I am pretty much over them.
14 months on, life is not too good, I didn't think I was getting worse, but in the last month I've developed achilles tendonitis, which on top of persistent neuropathy in my feet is more than irritating. Off to the podiatrist who, predictably wanted to sell me orthotics. That whole performance cost over $200 buck, after the chronic care subsidy.
Now I have some shitty thing happening in my 'bad' arm that feels very much like cording except my skin is also so sore i can't bear anyone touching it. That's moved from my wrist upwards in two weeks, if I have to extend my arm I help and it feels disgusting. The minion thought it might be nerve damage but because my arm in now swelling it's off to the lymphoedma crew on Thursday. What's the bet they want to put me in compression garments.
I've lost my casual job--a combo of the business not having enough work for me and my being too slow to be hired out by the hour. My brain is porridge and when I could work through things in my own time then bill for what I thought a normal person would I could fudge it. Not when I'm temped out and have to work in someone else's office..to top it all off my blood pressure has become such a concern (wonder why) that I need to wear a twenty-four hour monitor. They really hurt when they need to get up over 170 to get a reading.
Sigh. Sorry for the rant, but this is not the way I thought things would turn out.
14 months on, life is not too good, I didn't think I was getting worse, but in the last month I've developed achilles tendonitis, which on top of persistent neuropathy in my feet is more than irritating. Off to the podiatrist who, predictably wanted to sell me orthotics. That whole performance cost over $200 buck, after the chronic care subsidy.
Now I have some shitty thing happening in my 'bad' arm that feels very much like cording except my skin is also so sore i can't bear anyone touching it. That's moved from my wrist upwards in two weeks, if I have to extend my arm I help and it feels disgusting. The minion thought it might be nerve damage but because my arm in now swelling it's off to the lymphoedma crew on Thursday. What's the bet they want to put me in compression garments.
I've lost my casual job--a combo of the business not having enough work for me and my being too slow to be hired out by the hour. My brain is porridge and when I could work through things in my own time then bill for what I thought a normal person would I could fudge it. Not when I'm temped out and have to work in someone else's office..to top it all off my blood pressure has become such a concern (wonder why) that I need to wear a twenty-four hour monitor. They really hurt when they need to get up over 170 to get a reading.
Sigh. Sorry for the rant, but this is not the way I thought things would turn out.
120 Replies
- @sickgirl I started Letrazole and took it for a year then changed to Anastrozole. The difference is just semantics. Neither agree with me, which I could bear if there was any guarantee they'd keep the cancer under control. Oh well, they are the best option we have at the moment.
- Oh @zoffiel - I've obviously been reading too many crime novels as I read your comment as "I drew a texta line around the lovely carpet" and wondered whether you were up to no good - well, I'm sure you are usually but perhaps not that no good.
Take care. - Hi @Zoffiel, which Ai drug are you on out of interest? I’m on letrozole been only like about 3 months and the joint pain is tough. Also have neuropathy in feet and hands and not sure if because of this the pain is worse there. Not sure how will cope for 5 years on it, bcn said today it can settle after 6 months? Maybe I’ll givd it at least that long and see if can continue with it or switch to tamoxifen. She said the hot flushes can sometimes be worse on that
- Deal. About to unwrap myself and see what's going on...
- Just me and the Hound, Kate. I drew a texta line around the lovely scarlet swelling (do so love red, it matches my neck) and am keeping a close eye on it. Hurts like hell which is not helping me get off to sleep; if it gets much worse I'll head into town. What a monster pain in the arse, though it helps explain why I've been particularly blah the last few days. Do you a deal, you stop producing pus, and I'll hold off on the spewing.
- We all have our good vibe antennas on for you @Zoffiel - let us know how you’re feeling xx
- Oh no Marg! What a shitstorm. I'll cross my fingers that the antbiotics do the job and there's no midnight run to the hospital. Have you got someone with you? I do hope so. You poor love, you are in the wars. No spewing!! K xox
- Sorry to hear that you are having to face these challenges. Unpleasant as it is, persist with the anti's, cellulitis can quickly get out of control, the sneaky bugger.
What's brown and sticky? A stick.
(Hope that gave you a little of the best medicine to tide you over) - Pooh bum piss fart!!!
As soon as you said your arm was now red and swollen I thought cellulitis, but hoped I was wrong. I hope the oral antibug drugs do the trick.
You offer so much to this site, maybe it's time we gave a little back to you, by way of support. I don't have the knowledge around HR that you do, from previous threads, so I can't offer a lot there, but to say that it's a really crappy thing to happen.
Thinking of you - Bugger @zoffiel! That's just crap. Hope the drugs kick in quickly.
