Forum Discussion

samouatt's avatar
samouatt
Member
15 years ago

Ok I've been remiss

HI Team,

Sorry I have been a little absorbed lately and haven't been back to do my bit.  To all those who have had the courage to contribute I acknowledge you!  Your stories are rich in emotion and I can hear the pain that this terrible disease has inflicted not just on those you love but on you also.  

I guess I wanted to start this group to let you know that you are not alone and there is a community of us out here who have an inkling of what you are going through.  While I can never understand how you feel I can appreciate your suffering through the lens of my own experience.

Funny but divorce was not a an issue ever raised for us.  If anything this experience has bought us closer together and we now choose to focus on opportunities that this experience has given us.   For me there is now a burning desire to help others going through a similar experience.  I have written a couple of blog posts on a wordpress site that some of you may find helpful.. Feel free to let me know what you think!

http://latebreastcancercarersjourney.wordpress.com/

Take care

Simon

3 Replies

  • Amy's avatar
    Amy
    Member
    15 years ago

    Hi Simon

    Thanks for sharing.  I was diagnosed with advanced breast cancer in december last year and it has been a rollercoaster ride since!  I go for scans in  a couple of weeks to see if the treatment regime is working or not.  Like you say, it's hard getting your head around the fact that the treatments will most likely change as we go on this bumpy ride!

    I'll get my husband to check out your blog etc!  I think he might like to read about someone else going through the same thing as him!

    Take care

    Amy

  • Amy's avatar
    Amy
    Member
    15 years ago

    Hi Simon

    Thanks for sharing.  I was diagnosed with advanced breast cancer in december last year and it has been a rollercoaster ride since!  I go for scans in  a couple of weeks to see if the treatment regime is working or not.  Like you say, it's hard getting your head around the fact that the treatments will most likely change as we go on this bumpy ride!

    I'll get my husband to check out your blog etc!  I think he might like to read about someone else going through the same thing as him!

    Take care

    Amy

  • Samantha_Cunnin's avatar
    Samantha_Cunnin
    Member
    15 years ago

    Hi Simon..congratulations on taking the time and energy to write a few notes and share  personal emotions with us all. This crappy cancer world takes way too much of our 'brain' time & enrgy!!!  I was diagnosed with secondary cancer (primary in the breast) around 2 weeks post mastectomy and have to also get my (our) head around that treatment is forever (hopefully a long time yet) and it will change as my condition changes...I have a wonderful supportive husband who also feels he has learnt so much troughout this detour of life (sorry, can't call it a journey-isn't a journey a holiday????) and like yourselves have an amazing medical team - my superheroes!!!! which include an oncology specific pyschologist (she too has had to endure breast cancer-very recently)...

    anyway, wont take up more of ur valuable time...was great to see some words from another perspective online for others to see ( my hubby is very understanding) ..

    Keep up the great support for your wife and families, but remember too, this site is somewhere u can come to search for support which u may need at times too...we are all here to help one another  :)

    Sam