well, haven't i had a busy couple of days :( I have been experiencing intense headache and migraine for just over 3 weeks now and when they began we tried all the 'usual suspects' to eliminate the problem, but they obviously didn't work..so, on Tuesday an early morning e-mail to our oncology crew asking their opinion which was.."sit tight, u need a scan, i will ring u back with a time"...oh ok says me.. 15 mins later.." get down to the base hospital in warrnambool, the oncology registrar will be waiting for you and u are to have a CT scan on ur brain" ooohhh lucky me!!! CT results showed some cerebral lesions...bugger :( so Wed morn MRI and many chats with oncology staff.. later a plan was established to head down to melbourne early monday morning and commence 4 weeks (prob) of whole brain radiotherapy...needs to be effective to attack cancer b4 it starts doing damage to the brain tissue (none yet..YAY) so thats about it..we just go there, do that and steve will float back and forth between melb and home, bring the kids to me on the weekends..we have arranged an apartment close by for family and friends to stay in and visit me if they wish while steve is at home...Head pain is under control but they are keeping me in hospital to monitor all my cognitive signs and keep the meds up... will keep u all updated as we know more..just keep all ur fingers and toes crossed, pray, wish upon a star..whatever u think will help we will accept with open arms!!! keep smiling all..we are ..love ur support everyday xxxxx

Hi again Sam ....you're having a rough trot at the moment aren't you but I'm sure you will come through with flying colours ( more than likley blue and white - Roos - colours !!!). It sounds as if your medical team have all the bases covered so you just relax and let them get on with it ..... I know,easier said than done !!!! One of the very few drawbacks with our country is the distance between friends .... this network draws us together but distance keeps us apart. Sending love and positive thoughts to you and yours .... Luv .. Shir xx

Hi Sam, Thank you for keeping us updated and we will make contact with Steve to see how you are going over the next few weeks. We would love to come and see you but obviously that will depend on how you are feeling. In the mean time, we are sending you big love and cuddlesxxx All at BCNA

Whoops Sam, that was me writing, but logged in as the BCNA administrator. Still all sending you big love and cuddles. xx Daina

What a bummer of a week indeed. :-( Sounds like a battle plan in place and you are ready to fight. Thinking of you and your family and sending lots of positive energy your way. Amanda xx

Hi Sam Just logged in and saw your post. Bugger!!! Still on a positive note, a friend of mine had whole brain radiation 12 months ago and she is now doing great. Sending love to you and your family. Tanya xx

not what i thought i would be doing next week...

18 Replies

traxx65
Member
15 years ago
Hi Sam,

Just want to wish you all the best. Sending virtual hugs. Fingers crossed it all goes well.

Tracey xx
KymB
Member
15 years ago
Hi Sam ... thinking of you and sending lots of positive thoughts your way. xxx
Samantha_Cunnin
Member
15 years ago
thanx so much..gives me a lot of hope...my doc is very positive also as we had already experienced great results from chemo to the other 'torso' tumours last year..:)
Ann-Marie_AK
Member
15 years ago

Good luck with everything. Sending positive vibes out to the universe with your name on them!

Ann-Marie x
TonyaM
Member
15 years ago
Why does shit happen to the nicest people?Haven't figured that one out yet.I will pray for you and keep fingers crossed that your treatment works.

luv Tonya xx
Debbie_J
Member
15 years ago
Sam, sending big hugs and love. You are so strong I know you will kick ass.

Debbie
Amy
Member
15 years ago
Hi Sam

Sending you positive energy and thoughts. Keep on fighting the battle! We are all with you.

Amy x
FranP
Member
15 years ago
Oh No Sam , shit shit shit, i am with you in spirit girl and send heaps of strength and love to you and your family. what hospital are you in i would love to try and catch up but only if you are up to it? we are part of the community liaison fUn time girls, i am here for you.

you and family are welcome here any time, i know mansfield is to far away, three hours to melbourne, but if you need a rest yell.

take care you have me phone numbers on our group list any time if you need a shoulder please just ring or sms and i will call you back xxx
FranP
Member
15 years ago
Oh No Sam , shit shit shit, i am with you in spirit girl and send heaps of strength and love to you and your family. what hospital are you in i would love to try and catch up but only if you are up to it? we are part of the community liaison fUn time girls, i am here for you.

you and family are welcome here any time, i know mansfield is to far away, three hours to melbourne, but if you need a rest yell.

take care you have me phone numbers on our group list any time if you need a shoulder please just ring or sms and i will call you back xxx
louiseg
Member
15 years ago
Hi Sam

I hope your treatment goes really well and they get everything under control quickly for you....I will send lots of positive thoughts your way xx

It must be so hard to have to travel a long way for treatment and to be away from your family but I am glad they can come and see you regularly and hopefully you can be back home soon.

Take care and keep that positive attitude :)

Louise x