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Maria333's avatar
Maria333
Member
12 years ago

No more Arimidex :-( bone pain too severe

I wonder am I any better now , than I was during chemo.; 2+ years ago. As I sit here in pain (warning for my vent). Headaches I have had recently, my vision has become worse, shortness of breath and chest pain, neck pain which goes down to my left shoulder which feels stiff and sore. Hot flushes and cold sweats, sleepless nights, tight swollen sore hands, sore feet with tingling and sharp pain going down my left leg. Hip joint pain and painful knees front and back.  Not to mention the foggy thinking and mood swings.  Now after a blood test it seems I have high cholesterol and low vit D. So if looked up side effects of Arimidex and bingo, I am a winner. Oh I dont have all the side effects, but close enough to be the winner.

Am I googling too much, some would say ignorance is bliss. I do prefer to be aware.

After 18 months on Arimidex I have decided no more - I need a break - I need to detox. Yes I have talked to my GP, just waiting to hear back from my oncologist.

Why now when a friend has made it thru to 7 years, what is so different. Why have some fought and fought but not made it.

Three lovely ladies and one young man that came along to our cansupport meditation group passed away. I have decided I have been mourning for so long, I must let their spirits go - release the sadness.

Didn't I do the hard hards thru chemo, thru surgery, thru radiation and more surgery. Where is my quality of life.  I have tried effexor but my thinking was foggy, I have tried Omega 3 to help with bone pain that helped for a while. I exercise and continue with my yin yoga weekly which is amazing - like a  magic wand - but it is short lived and the pain returns. I have started reiki which also is amazing like a magic wand but pain returns. So it must be time for a detox.

Has anyone else had a break from Arimidex? Have you noticed any difference?

So do I go back on the guinea pig treadmill lets try this and if it doesn't work we can try this, really how far have we come - where has all this research taken us. Will someone give me some good news, some hope. Is there something I completely missed.

Now I know I am sounding depressed, I just feel a little lost at the moment.  I will bounce back I just need a plan. I have decided to go see a naturopath and get my diet in order and detox and start fresh.

I know about all the living well retreats away that are suppose to be magical, hold your hand and put you on the right path for wellnes and living a quality life after chemo, but really who has any money left to pay for these after all the treatments. Why dont they give them out to people that could really use them. Hmm maybe they do, maybe I am being synical. I have helped raise funds thru. walks, Girls Night In and Relay For Life. With all the money raised I could have gone on a retreat myself.

After all I am cancer free, I mean how is it, that such a little bugger (in my case - 4cm after shrunk from chemo) can and has caused all this angst and pain. I know a lady that has been havign chemo for the last three years - yes yes I know there are different types of cancers and we are not all the same. But how much money are we throwing at this - or maybe are we placing it in the right areas.

I have helped heal a young daughter thru lung surgery. An ailing elderly mother thru shingles and now a son thru asthma nasty side effects. I think I have fallen apart and am now saying no more enough is enough.

Who is here to hold my hand - I have had enough tears and sadness and pain.

All is not well, but it will be soon.

Maria333

2 Replies

  • Hello Maria

    I am so sorry to read this.  It sounds like you have had a really difficult time. Some women do have this sort of trouble taking arimidex, so you're certainly not alone.

    I'm glad you have consulted with your GP and are waiting to hear from your oncologist.  Some women are able to try switching to another type of aromatase inhibitor (a drug similar to arimidex), which has helped them.  Your oncologist should be able to give you some options. 

    In the meantime, you may like to read our Hormone Therapy & Breast Cancer booklet.  You might find some ideas in there useful as well.

    You may also like to check out the Otis Foundation. The Foundation provides retreats for people with breast cancer at no charge. It may be something to look into?

    I hope all goes well with your oncologist, Maria - and I hope you feel much better very soon.

     

    Nic

     

     

  • Hello Maria

    I am so sorry to read this.  It sounds like you have had a really difficult time. Some women do have this sort of trouble taking arimidex, so you're certainly not alone.

    I'm glad you have consulted with your GP and are waiting to hear from your oncologist.  Some women are able to try switching to another type of aromatase inhibitor (a drug similar to arimidex), which has helped them.  Your oncologist should be able to give you some options. 

    In the meantime, you may like to read our Hormone Therapy & Breast Cancer booklet.  You might find some ideas in there useful as well.

    You may also like to check out the Otis Foundation. The Foundation provides retreats for people with breast cancer at no charge. It may be something to look into?

    I hope all goes well with your oncologist, Maria - and I hope you feel much better very soon.

     

    Nic