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such_is_life's avatar
such_is_life
Member
13 years ago

no genetic testing for me, there goes the interstate wars

Well off I went to the genetics  people today and  despite having 2 aunties, 2 first cousins with breast cancer and father with prostate cancer and a few other unrelated ca's in the family I do not qualitfy for testing, problem with mother being one of 13 apparently, oh well hopefully by the time my 15 and 13 year old daughters need to start  tests in there 20's there will be a lot more options with the way genetic testing and theapys are coming along in leaps and bounds at the present time, certanly dont have a spare $2500 that is for sure

Cheers eveyone Narelle

3 Replies

  • Beppie's avatar
    Beppie
    Member
    10 years ago

    Hi Narelle

    my father, 3 aunts and their children and grandchildren and my self all had breast cancer. Mine was free as I qualified for it. I tested negative for the BRCA genes but the geneticist said that's doesn't mean I haven't got it or that it wasn't picked up. The test isn't conclusion. My cousins however tested positive and all members had Breast cancer, through 3 generations. In other cases my aunt didn't have cancer but her daughter did and her granddaughter too. In total there are 12 members in our family who've had breast cancer - myself twice. My cousin had her breasts removed prophylacticly aged 27 and died of breast cancer aged 40. there is no guarantee with the testing so if you are really keen to have it go ahead. I would have thought you'd meet the requirements for free testing. I'm in Brisbane so maybe the states are different. Good luck with it all xx

  • such_is_life's avatar
    such_is_life
    Member
    13 years ago

    Thanks Lara no still not sorted on the scars or margins, have just taken a little breather, I have to see the surgeon again at the end of the month so will try again then, think I have to go through with her doing the exchange surgery as that is the way medicare codes things, after that I will maybe go to bendigo as I am half way between there and ballarat so will maybe get another opinion from there, I told the genetics person it was lucky they where making advances  in the testing as I thought my daughters lives where worth more than $2500, he didnt really have a response to that xx

  • FD's avatar
    FD
    Member
    13 years ago

    Hi Narelle, that really sucks. I too didn't qualify however she was kind enough to tell me I am still considered a high risk family and now all of my sisters need and qualify for yearly MRI's. She also mentioned that although they didn't think it was BRCA 1 or 2 involved they did think mine was genetically related but they just don't know how or how to test that as yet. Then she said "so how do you feel about that"? What the F!!! how do you think I feel??? I then said to her if I hadn't been backed into a corner to go private I could of afforded to pay the $2500. The world works in mysterious ways. Lets hope a simple cure is found before our babies need suffer the same. Take care and I hope you got your surgeon, margins and scars sorted. Lara xx