Neulasta bone pain SOS!

No I haven't tried Mersyndol so thanks I will give that some thought. I have some lorazepam so will give that a try first.

Thanks for your reply :)

Hey Joey

You poor sweetheart, I so wish I could reach out my arms to you and give you a great big loving hug and make all the sadness and feeling of being lost go away for you.  You have been an inspiration to me as I have read your blogs and your wonderful humour since I started this journey.  It is okay sometimes for us to be down just as long as we can pick ourselves up, brush ourselves off and carry on our merry way.  Maybe get on our broom if needed (see quote of the day below :-)

I had my ultrasound today and the lovely doctor tried aspirating it under ultrasound with a lot of pricking, prodding, pushing and so on to no avail.  She also couldn't get much fluid out but I tell she gave it a bloody good try!!.  I await my next doctors appt tomorrow with baited breath mmmmmmm

I have taken note of the book you recommend and will defiitely seek that one out.  I find it so interesting reading these books written by other people travelling on their own journeys (each of us enduring our own set of surprises, hic ups, lows and highs along the way).  Certainly sounds like you have a lot of things you could put pen to paper about the account of your journey so far.  Just think it gotta get better precious cause it can't get much worse, what ya reckon. 

 I am reading a book called "Welcome to the Amazon Club" by Jan Bissell (A remarkable journal of hope, bravery and strength).  I feel I can really relate to her journey.

Quote of  the day:
'Whatever  you give a woman, she will make it greater. If you  give her sperm, she'll give you a baby. If you  give her a house, she'll give you a home. If you  give her groceries, she'll give you a meal. If  you give her a smile, she'll give you her  heart.
She multiplies and enlarges what  is given to her. So, if you give her any crap,  be ready to receive a ton of  sh#t.'
 
Keep your chin, be strong, beat this sucker, take it on the other cheek, keep your pecker up, she'll be apples, you will be fine, stiff uppper lip  and so it goes on and on.  I am sure you have heard them all already, maybe you can add some to my list :-)

I am here for you every step of the way just as you have been for me.  (even with my weird sense of humour)

LOL,

Mich xo

According to my onc, missing the last chemo shouldn't make much difference.  Plus now I'm starting radiation early because of this so I'm really glad about that. 

I'm really down and depressed at the moment.  My energy levels are extremely low.  I guess I expected life to start to bounce back, but like my skin, nothing much is bouncing back any more. 

I was on 4x TC.  The side effects were: Cycle 1 - shortness of breath during Taxotere.  Cycle 2 - instant extreme shortness of breath.  Ceased Taxotere.  Cycle 3 - changed to Taxol - neurological side effects - slurring speech, memory loss, lack of co-ordination (which I argue to challenge anyone in chemo to walk a straight line!!!), neuropathy of fingers, feet and throat.  The onc deemed it too dangerous as each tx has resulted in worse and worse side effects.  But now I feel lost.

I think you should read "The Elegant Art of Falling Apart" by Jessica Jones.  Actually, I think everyone going through breast cancer should read it.  In the wee hours of the morning, when you're crying and feeling completely lonely, you can pick up the book and read about her journey, which is hilarious at times, and always honest without being crass (I'm crass, so I notice these things).

Fingers crossed for your ultrasound.  Let us know how you get on.

Take care

Jo xx

 

According to my onc, missing the last chemo shouldn't make much difference.  Plus now I'm starting radiation early because of this so I'm really glad about that. 

I'm really down and depressed at the moment.  My energy levels are extremely low.  I guess I expected life to start to bounce back, but like my skin, nothing much is bouncing back any more. 

I was on 4x TC.  The side effects were: Cycle 1 - shortness of breath during Taxotere.  Cycle 2 - instant extreme shortness of breath.  Ceased Taxotere.  Cycle 3 - changed to Taxol - neurological side effects - slurring speech, memory loss, lack of co-ordination (which I argue to challenge anyone in chemo to walk a straight line!!!), neuropathy of fingers, feet and throat.  The onc deemed it too dangerous as each tx has resulted in worse and worse side effects.  But now I feel lost.

I think you should read "The Elegant Art of Falling Apart" by Jessica Jones.  Actually, I think everyone going through breast cancer should read it.  In the wee hours of the morning, when you're crying and feeling completely lonely, you can pick up the book and read about her journey, which is hilarious at times, and always honest without being crass (I'm crass, so I notice these things).

Fingers crossed for your ultrasound.  Let us know how you get on.

Take care

Jo xx

 

Hey Joey

Congrats on finishing your chemo and being able to talk about it in the past tense.  Whoo hoo!!!!!  But seriously will there be any repercussions from not finishing the chemo or do they believe you had received sufficient?  I have just recently read where another lady also could not continue due to low white cell count and too many side effects and they said that the final dose would not have made a big difference to the whole picture.  She had 4 cycles of A.C.??? 

What sort of side effects did you have to deal with?  Was your white cell count down after your first cycle like mine?  I only wish I could get rid of this bloody infection!!!!!  It certainly can't be helping my case any. 

I am having an ultrasound on Monday to the left breast to check out the hematoma.  I am seeing Doctor on Tuesday hopefully with results from pathology and ultrasound and then we will go from there.  I feel my life has been about waiting or just wishing my life away..............this last few months anyway.

Do you/or have you had raditotherapy. I have to have 7 weeks of it down in Perth.

Thank you so much for being there, it is so much appreciated.

Take care, keep smiling LOL

Mich x

Hey Joey

Congrats on finishing your chemo and being able to talk about it in the past tense.  Whoo hoo!!!!!  But seriously will there be any repercussions from not finishing the chemo or do they believe you had received sufficient?  I have just recently read where another lady also could not continue due to low white cell count and too many side effects and they said that the final dose would not have made a big difference to the whole picture.  She had 4 cycles of A.C.??? 

What sort of side effects did you have to deal with?  Was your white cell count down after your first cycle like mine?  I only wish I could get rid of this bloody infection!!!!!  It certainly can't be helping my case any. 

I am having an ultrasound on Monday to the left breast to check out the hematoma.  I am seeing Doctor on Tuesday hopefully with results from pathology and ultrasound and then we will go from there.  I feel my life has been about waiting or just wishing my life away..............this last few months anyway.

Do you/or have you had raditotherapy. I have to have 7 weeks of it down in Perth.

Thank you so much for being there, it is so much appreciated.

Take care, keep smiling LOL

Mich x

Hi Mel

Thanks heaps, I agree no one should go through that pain with todays medical knowledge available.  So I have noted the drugs you mentioned and will be discussing it further with the docs.  I am sorry you also had to go through a similar experience.  I did find the heat pack for my back was good but to keep that going for a full on 48 + hours has been impossible. 

You girls have been so wonderful with all the advice and knowledge you have given me, thank you one and all!!

LOL

Mich x

Hi girls

I have just had my 2nd FEC chemo on Monday 26th.  I had a Neulasta injection Tuesday 27th.  I am no woossse and used to living with pain but I believe I have been living in a hell hole for a good couple of days and just starting to dig my way out.  The chemo bomb when it hits is bad enough but the excruciating pain from the injection sent me to hell and back I am afraid.  I had absolute excruciating back pain and really do not wish to go through that again.  I am not sure what the answer is for the pain but plan to try and find out should I have to have the injection again. Any advice/suggestions is always greatful.

I have had an ongoing infection from the first original surgery done on 22/12/11 of which I have a seroma and another word was used starting with a p???.  I have had it aspirated twice but both times doctors have been disappointed with small amount they have been able to get out to send to pathology.  I am going to have a ultrasound of the breast next week to see what is going on.  Needless to say my white cell count was low and therefore necessary I have the Neulasta injection which I am very appreciative but the Panadol they indicated was all I would need did not suffice in any way I am afraid.

My heart goes out to anyone having to have to have this injection and then to go through it's effects on top of your chemo. Be strong on the good days and love yourself on the bad days :-)

All my luv hugs and best wishes to you all. xox

Hi girls

I have just had my 2nd FEC chemo on Monday 26th.  I had a Neulasta injection Tuesday 27th.  I am no woossse and used to living with pain but I believe I have been living in a hell hole for a good couple of days and just starting to dig my way out.  The chemo bomb when it hits is bad enough but the excruciating pain from the injection sent me to hell and back I am afraid.  I had absolute excruciating back pain and really do not wish to go through that again.  I am not sure what the answer is for the pain but plan to try and find out should I have to have the injection again. Any advice/suggestions is always greatful.

I have had an ongoing infection from the first original surgery done on 22/12/11 of which I have a seroma and another word was used starting with a p???.  I have had it aspirated twice but both times doctors have been disappointed with small amount they have been able to get out to send to pathology.  I am going to have a ultrasound of the breast next week to see what is going on.  Needless to say my white cell count was low and therefore necessary I have the Neulasta injection which I am very appreciative but the Panadol they indicated was all I would need did not suffice in any way I am afraid.

My heart goes out to anyone having to have to have this injection and then to go through it's effects on top of your chemo. Be strong on the good days and love yourself on the bad days :-)

All my luv hugs and best wishes to you all. xox

My scenario was, basically "Run over by a truck" feeling for 5 days each time,  which included 48 hrs no sleep and aching madly bones joints etc.

my plan, plenty of dvd's to watch, did not bother with sleep, had people organised for each evening meal to distract me, & lay on the couch.

I can't add regarding pain treatment, but it is a positive treatment that your bones are working really really hard to generate new white blood cells from your bone marrow all at once to keep you healthy,  and although painfull was better than spending 7 days in hospital with massive doses of antibiotics, hoping that you didnt accidently pickup an infection from anything [scary stuff] this all happened at the 1st round of taxotere. B