Forum Discussion

LucyBell's avatar
LucyBell
Member
2 years ago

My Update

So yesterday I had my 2nd colonoscopy in a week....and we know the prep for that is not delicious.  First one the biopsies were not taken from tumour (insert head slap here!)
Anyway - next week I get my chest port in for chemo.....which I can't start until the biopsy results back..see Oncologist Jan 5th oh plus an MRI next week too......
Until then I deal with the uncomfortable abdomen...no one has offered any comfort really - but hey it's xmas....I think they are all just in the merry mood....I'm not.

I'm still so in the dark as to can this be controlled, is it too far spread.

After colonoscopy I was mortified when the nurse came to bedside with my results and started reading it out loud for all to hear in recovery...mentioning cancer etc ....I kept saying I can read it myself .....OMG most my family don't know whats going on - until I have more to tell them and this witch was telling the world, very very very unprofessional!!
This was in the public system as was urgent, my first was in private one - theatre was all good in both.......I'm not sure how I am remaining calm but my aim is to beat this - 

  • Oh @LucyBell that public experience wasn't good and if your up to it give feedback. It is all so scary. We all know to keep busy waiting for the next step but hard if you are uncomfortable. Fingers crossed 🤞 for you. Stay strong, you can do this. You sound like a fighter and ready to take it on. Wishing you the very best.
  • @LucyBell thinking of you. Its. Hard waiting for results and dealing with anything over any public holiday period but Christmas time is the pits hang in there. We are here for you to unload to. 
  • I'm with you Lucybell. Scrambling to get bone scans etc..but of course it's Christmas and everyone is doing the same or have taken off early to have family time..can't blame them as it would be a hard job to not become over involved in though!
  • Thinking of you over Xmas, @LucyBell xx

    OMG - don't you HATE that picoprep for the colonoscopy!?  I reckon I should have lost a kg or two - but didn't!  

    I hope the port fitting goes well ... and you'll have your game plan 'soon' ... try not to get ahead of yourself, worrying about the treatment .. they will have the best game plan for you xx 

    Yep, as @Cath62 says - keep as busy as you can in the meantime - and afterwards as well .... it helps control the wandering mind ... 

    take care & all the best xx