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julz77's avatar
julz77
Member
11 years ago

my roller coaster ride of pt

Hi all :) my name is julz and im 30 single with a three and a half year old son. My journey began in 2009 when I was diagnosed with low grade phyllodes. It was removed but clear margins were not achieved and my surgeon didn't think it was necessary to perform another op it returned after the birth of my son in 2010 and in 2011 I got a second opinion with a fantastic surgeon and had it removed the next week then further surgery to get clear margins. Since then I have had surgery every year to remove lumps some fibroadenoma some low grade phyllodes. My last op was September last year. I discovered a lump at the start of this year and have since had ultrasound and core biopsy, my results have come back as malignant pt. I am booked in for mastectomy next thursday (they are removing my nipple) and have been told I will be having radiation therapy after I recover.
  • Wow Julz how extraordinary and how rough on you. Makes me think I'll go for radiotherapy definitely straight away, may be that will reduce recurrence . I hope it goes better for you now too , after your recovery from the mastectomy. I wish you peace of mind forever.

  • Did I call you Luz last time . Oh dear not good at this. Thinking of you.

  • Dear Julz  Wishing you all the best for September and your continuing recovery. I am no expert but the bra fitters are wonderful I found a sports bra best very covering and looks nice too. 

  • Hi Julz77, I  hope you are recovering well from your mastectomy. So sorry to hear that you have had such a long journey with this. Please continue to ask questions or just post to let us know how you are going with your treament. Best wishes Katie. x

  • Luz You are really doing it hard my dear. You did the right thing having a mastectomy but oh my heart goes out to you. Sending you lots of love and support Jeannie. This time you will beat the brute,.