Forum Discussion

Rachaelb1976's avatar
12 years ago

More decisions

Hi everyone, I have not been on here for a while but am now heading into my 5th round of chemo tomorrow My oncologist has advised that I have a 20% chance of recurrence of a new breast cancer over my lifetime ( I am 38 years old Her2 positive stage 1 grade 3, genetic testing all came back negative which is good news) If I choose double masectomy my recurrence risk drops to 1-2% I know it's a personal decision but would love to hear from others that were in a similar situation

5 Replies

  • It's definitely only a decision for you to make but I was diagnosed in 2003 at age 35 and had a single mastectomy, only to have a new cancer diagnosed in the other side in 2010 (resulting in another mastectomy and this time chemo too).  I wish that I had made the decision to have them both off at the same time......it's all good to look at it retrospectively though coz I wasn't actually ready to have a perfectly healthy breast removed at the time that I had the first one done!!

    Good luck with the decision,

    Louise

  • It's definitely only a decision for you to make but I was diagnosed in 2003 at age 35 and had a single mastectomy, only to have a new cancer diagnosed in the other side in 2010 (resulting in another mastectomy and this time chemo too).  I wish that I had made the decision to have them both off at the same time......it's all good to look at it retrospectively though coz I wasn't actually ready to have a perfectly healthy breast removed at the time that I had the first one done!!

    Good luck with the decision,

    Louise

  • You are right it is a decision that only you can make, but I understand you wanting other people's thoughts so you can think things through from as many angles as possible. I have had a left breast mastectomy, chemo and am now having radiotherapy before going on hormone therapy. This leaves me with a 19% chance of recurrence in the next 10 years (I am 47). If I could reduce this further by having a second mastectomy I would. Unfortunately for me this would make no difference for recurrence. It would only reduce the risk of getting a new cancer in the right breast. I am nevertheless considering a second mastectomy and then double reconstruction in the future simply because as Janey says, I would do anything to avoid having to go through all this again. The oncologist says that having had cancer in one breast I am at a slightly increased risk of getting it in the other breast. I think seeing a counsellor is a good suggestion, if you are struggling with the decision. Wishing you all the best no matter what decision you come to. Deanne xx
  • It's awful having to make a decision like this and I really feel for you. I never imagined being faced with such a choice in my life. My situation was slightly different from yours in that I chose a double mastectomy mainly for psychological reasons. My Onc and Breast Surgeon thought that medically, my chances were only slightly lowered for recurrence. I had two lumps in the left breast, one TNBC and the other not. Apparently this is rather rare so I had two different plans of treatment. My lumpectomy pathology results showed extensive DCIS still remaining in my breast and it was recommended I have the left breast removed. I couldn't stand the thought of going through all this again in the other breast and they naturally couldn't guarantee that I didn't have DCIS in my right breast. It's apparently very hard to detect unless a biopsy is done. Even then it can be a hit and miss thing. I just didn't want to take the risk no matter how small. So after quite a few months I made the decision to have a double. Turns out that my right breast was clear of any cancer but I still think I made the right choice. It's a tough choice but you are still young and the odds are really greatly reduced for recurrence if you choose a double. I know what I'd do but that is me and I'm not trying to influence you. Talk it over with your loved ones and perhaps see a counsellor. This helped me in my choice.

    Good luck with your choice Rachel. All the very best. Love Janey xxx

  • It's awful having to make a decision like this and I really feel for you. I never imagined being faced with such a choice in my life. My situation was slightly different from yours in that I chose a double mastectomy mainly for psychological reasons. My Onc and Breast Surgeon thought that medically, my chances were only slightly lowered for recurrence. I had two lumps in the left breast, one TNBC and the other not. Apparently this is rather rare so I had two different plans of treatment. My lumpectomy pathology results showed extensive DCIS still remaining in my breast and it was recommended I have the left breast removed. I couldn't stand the thought of going through all this again in the other breast and they naturally couldn't guarantee that I didn't have DCIS in my right breast. It's apparently very hard to detect unless a biopsy is done. Even then it can be a hit and miss thing. I just didn't want to take the risk no matter how small. So after quite a few months I made the decision to have a double. Turns out that my right breast was clear of any cancer but I still think I made the right choice. It's a tough choice but you are still young and the odds are really greatly reduced for recurrence if you choose a double. I know what I'd do but that is me and I'm not trying to influence you. Talk it over with your loved ones and perhaps see a counsellor. This helped me in my choice.

    Good luck with your choice Rachel. All the very best. Love Janey xxx