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Dcnell's avatar
Dcnell
Member
11 years ago

Metaplastic breast cancer

Hi I am new to this site. This is the third time I have been diagnosed with breast cancer in 17 years. This time around I have been told it is a rare form of breast cancer - Metaplastic breast cancer with osteoclast giant cells. I'm due to go in for left side mastectomy next week. Further treatment unknown at this stage. I would be interested in contacting anyone who has been diagnosed with this type of breast cancer and their experience/treatment with it. I was first diagnosed at 33. Thank you

3 Replies

  • It has been a full-on June for you - the biggest hurdle, surgery, is now behind you - after 4 days I guess you are at home again or getting ready to be.  Hope you found it manageable too - I was surprised how relatively painfree my recovery was.  Panadol did the trick for me after the first couple of days.

    No, I wasn't sick on chemo until the very last treatment, when I felt a bit spacey and dizzy.  Up until then the pre & post meds kept all side effects under control.  I was one of the lucky ones and I hope you will be, too.  I found that a cup of green tea with fresh ginger slices first thing each morning was a real tonic - really noticed a difference if I didn't have it.  Yes, I lost my hair, but not until almost at the end, when it became thinner and I cut it off.  My synthetic wig then took over along with scarves & turbans.  If you can get to a Look Good Feel Better night, they are wonderful and great fun and teach you how to handle all the above, as well as give you lovely make-up to take home.

    Don't go to Dr Google - there is some nutty info out there!  Have you asked for your My Journey kit from BCNA yet?  It's free and a mine of information and advice.  It also lists reliable sites to visit.

    All the best - stay in touch and let us know how things are going.   Michelle xx

  • Hi Michelle I was diagnosed mid June. Had lumpectomy early June doctors thought beign that's why the lumpectomy. Left mastectomy was undertaken on 25 June as it turned out to be metaplastic. I have had radiation before so it looks like chemo for me. My doctor is going to refer me to an oncologist. Feeling not to bad thought I would be worse. I was never diagnosed with metaplastic breast cancer before so I am trying to find out as much as possible. Especially treatment re chemo. Were you sick on the weekly chemos, (nausea, vomiting), I'm guessing you lost your hair. There is a lot of conflicting info on net. I am happy to hear your 2 yearly checkup was all clear. Dionne
  • I was also diagnosed with Metaplastic (TNBC) breast cancer in 2012.  My cells were Spindle cells.

    My treatment was bilateral mastectomies, 12 weekly chemos, 28 rads and followed up with a hysterectomy - all in the same year, March till November.

    I have now had my 2 year anniversary since surgery and thankfully all is clear with no evidence of disease.

    Can I ask you what were your first diagnoses?  I am so sorry you have had to travel this road 3 times.  Have you had chemo previously?

    I wish you all the very best for net week.  Stay in touch.  Big hug.  Michelle xx