Lymphoedema booklet
After approx 2 years work by Northern Sydney Cancer Action Network CAN and Lymphoedema Support Group (LSG) of nSW, we have a booklet " Lymphoedema - untold stories" available on the lsg web page: www...
Forum Discussion
oh dear you have been in the wars! Hope things are on the improve soon. glad to hear the biopsies etc haven't turned up "anything nasty" although stressful when they happen and you wait for the results.
Seems you are lucky to get treatment in a public hospital. I have none near me but 3 yes 3 private ones dealing with lymphoedema. Working to day Saturday to pay off out of pocket from oncologist visit yesterday and Fathers Day will be part payment for my most recent sleeve for which my fund gives little compensation. Have to be happy they did however pay for my month long therapy at 1 of the private hospitals just not all the other out of pocket expenses I pay on a part time salary. At last after 2 years I am down to custom sleeve for flying, travel, exercise and no longer wear sleeve or sleeve and glove each day as previously.
I know my problems with lymphoedema started when they did the first core biopsy following surgery and initially it was in my boob also. Hot weather and gardening 4 years later in heat plus tick bite lead to my needing "heavy duty" treatment once could get someone to refer me to be seen by a therapist - hence my advocacy work and the reason we did the booklet.
let me know if I/we canhelp further with things. Interested to hear more about Bowen treatment also.
Wishing you well in your lymphoedema journey,
Carol