Forum Discussion
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- desinhaMemberOh yes it has been quite challenging so far !! Coming to terms with the reality
- Jen79xMemberIts a rollercoaster journey isn’t it. Best wishes with all your decisions. It hard when we are still in shock
- desinhaMemberYes I have been diagnosed with Metaplatsic (Rare and aggressive Triple negative) cancer. Thankfully no Lymph node involvement for me as well however my genetic test result is still awaited.
- Jen79xMemberFor the xeloda If I understand right I wil have that only if I don’t get the pCR which they won’t know until surgery - I think only 40ish percent get that? Mine tumour has reduced down to 1cm * 0.6cm crossing fingers it’s gone after the rest of the chemo. Are you tn ? X
- Jen79xMemberI am triple negative and brac1 so they are going to take the left side at the same time and reconstruct in the same surgery. I’ve had chemo first - ac-t but with weekly carboplatin added because if brac1 I have 6 more chemo to go then done ! Following that radiation (because of tnbc) and then surgery. Oncologist is being as agressive as can - I’m 38 think she thinks I can handle it (not easy for any of us)
- Jen79xMemberSo unfair I typed this huge response and it’s gone ! I’ll start again
- Jen79xMemberNo worries
- desinhaMember@Jen79x Thanks for the update. Its really useful. I have few questions though: 1) Double Mastectomy was your choice or recommended by Oncologist? Did you chose immediate reconstruction of breasts? Also did you go for Double Mastectomy straightaway after diagnosis without any initial surgery? 2) If there are no Lymph nodes involved, any specific reason of opting for Radiation? For how many cycles? 3) What's the recommended Chemo regimen for you? Is it AC-T? 4) Where are you in your treatment plan? Have you completed Chemo and Radiation? 5) Have you undergone any test to determine complete Pathological response or planning to go for Xeloda as a preventive measure? Sorry for asking too many questions :)
- Jen79xMemberI don’t know much yet either as oncologist only mentioned it on Tuesday but apparently it’s a oral form of chemotherapy, for us at the time of pathology they hope for complete pathological response being that there are no cancer cells left, but this only happens in 30 - 40% of tnbc. If there is still cancer cells the xeloda trial showed 6months lowered the risk of return of the cancer by 30% which is huge
i don’t know much about the side effects yet though - RachelGMemberHi @Jen79x, I have tnbc also but just wondering what xeloda is