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Marnz's avatar
Marnz
Member
13 years ago

Lumpectomy to mastectomy in 60 seconds

Hi, I have had a very interesting journey so far to say the least. I was diagnosed with DCIS in the right breast back in December 2012. Went to have lumpectomy 21 Jan and it was cancelled. Went to have Surgery again on Jan 30th but they couldn't perform the localisation as they couldn't see the DCIS. Cancelled again. They say that the biopsy must have removed too much. I was sent for an MRI. This is where it gets interesting. MRI shows something in the left now. Need an ultra sound and biopsy. Had that done and got results yesterday. Yes it's cancer in the left now. A bit surreal but I must be honest I kind of expected it after the way this journey has gone so far. I believe someone was watching over me. If they had performed the lumpectomy to begin with they would not have found the left cancer. It did not originally show in mammogram and an ultra sound wasn't done on left when they were looking at the right. Now I will have a double mastectomy I just don't know the date yet. It has been a long long journey to get here but I'm glad we are finally moving forward. I'll get new boobs that won't sag anymore that's a bonus. :-)

15 Replies

  • Big hospitals often misplace referrals.I've learnt the hard way and now I always ask for the referral in my hand and then personally take it to where it needs to go.We are all different but with each time I had breast cancer,I wanted surgery straight away - get cancer out of me! The first time I waited 2 weeks and the second time I waited 3 weeks.I can understand your concern but I guess it's a longer wait if plastic surgeons have to be co ordinated for reconstruction.The plastic surgeon will probably go over your options ie. expanders for an implant later or a diep or tram flap or other.Reconstruction is something you can always do later if you are worried about the operation date dragging out.Is your visit to Brisbane soon?

  • Big hospitals often misplace referrals.I've learnt the hard way and now I always ask for the referral in my hand and then personally take it to where it needs to go.We are all different but with each time I had breast cancer,I wanted surgery straight away - get cancer out of me! The first time I waited 2 weeks and the second time I waited 3 weeks.I can understand your concern but I guess it's a longer wait if plastic surgeons have to be co ordinated for reconstruction.The plastic surgeon will probably go over your options ie. expanders for an implant later or a diep or tram flap or other.Reconstruction is something you can always do later if you are worried about the operation date dragging out.Is your visit to Brisbane soon?

  • I was diagnosed 3 months and still no closer to a surgery date. The Royal brisbane says they haven't received my referral to see dr there and my dr at Radcliffe says he faxed it thru. Don't you think they would just resend the dam thing? Hmmm. Is 3 months too long to be waiting for this? I initially was having a lumpectomy for DCIS in the right. They found invasive in the left and have advised double mastectomy. I would like immediate reconstruction so they are sending me to surgeon at brisbane to assess if that's possible then if he can't I go back to Radcliffe for just mastectomy. He recon can be done I then stay at brisbane. I am getting more and more anxious by the day as I am getting paranoid now that it is spreading. Can someone please let me know how it all works pretty please. Surgeons give you minimal info. Grrrr. Thanks ladies. Xx

  • I was diagnosed 3 months and still no closer to a surgery date. The Royal brisbane says they haven't received my referral to see dr there and my dr at Radcliffe says he faxed it thru. Don't you think they would just resend the dam thing? Hmmm. Is 3 months too long to be waiting for this? I initially was having a lumpectomy for DCIS in the right. They found invasive in the left and have advised double mastectomy. I would like immediate reconstruction so they are sending me to surgeon at brisbane to assess if that's possible then if he can't I go back to Radcliffe for just mastectomy. He recon can be done I then stay at brisbane. I am getting more and more anxious by the day as I am getting paranoid now that it is spreading. Can someone please let me know how it all works pretty please. Surgeons give you minimal info. Grrrr. Thanks ladies. Xx

  • Strange how everything turns out isnt it , your well on the road and you sound like a pretty calm and sensible person? or you may dispute that! Amazing how the bc throws a spanner in the works but I think we all gain something from it. Good luck with all your nexts steps.

    Regards Adean

  • Strange how everything turns out isnt it , your well on the road and you sound like a pretty calm and sensible person? or you may dispute that! Amazing how the bc throws a spanner in the works but I think we all gain something from it. Good luck with all your nexts steps.

    Regards Adean

  • The diagnosis has sure dragged out for you.But sometimes things work out for the best and it looks like that for you. There are advantages to having a double mastectomy -you'll get the same size new boobs, no more mammograms, no more worry of cancer returning in your breasts, hopefully avoiding radiation and chemotherapy.In hindsight,I wish I'd had a double cos lopsided is a pain.Anyway,I hope you get a date soon so you can get it over with.

                              Tonya xx

  • That is amazing that you are getting recon so quickly in the public system.Can I ask who's doing your diep surgery? I'm not sure where you live but I have started up a support group for the hills area called Kellyville breast buddies and we will be meeting this Friday at Flower power cafe at Glenhaven at 10am.You are more than welcome to come.

                                                         Tonya xx