Looking to speak to women that have been or going through the Triple Negative BC journey.

Hi Tanba, I hope this helps with what you are needing to find out. Let me know if I can help with anything else. Ann-Marie x

Hi I am a triple negative. Have had 6 months of chemo and will start Radiothreapy on the 18 May for one month. I will check the online network suggested by Ann-Marie. Anne-Marie ??

I am a two time triple negative survivor. Almost 5 years clear from second diagnosis YAY... Just waiting for some scans next week and an appointment with my surgeon after that.... hopefully I will have good results and my shout of rooftops after that ;) I belong to the triple negative group on here. Don't forget to check your My feed daily which you can do by using the drop down tab under your name at the top of the page. you will see posts from all the groups you belong to there. Paula :)

Hi I am also TNBC. Diagnosed last year and finished treatment on 19/04/16. Surgery x 2, 6 months chemo and radiation.. jodie ??

Did you have a mastectomy? Im starting my treatment next Tuesday.

Looking for others that have experienced Triple Negative BC

28 Replies

socoda
Member
8 years ago
Hey @Tanba, sounds like you have had a totally crap time of it. I hope for you that you don't feel pressured into feeling like you should always be upbeat, happy go lucky etc etc because we all have to work through major feelings, issues, uncertainties. Everyone is an individual and finding our way through can have it's twists and turns and ups and downs. You will get to your new normal, but don't put a time frame on it, if you feel you need to grieve then grieve. You'll get there lovely- just be gentle on yourself. Xx Cath
positive3negati
Member
8 years ago
Hi there,
I had TNBC and I'll hit four years since diagnosis this month (HOORAY!). I wrote a blog all the way through my treatment that others have found useful. You can have a look here: https://positive3neg.wordpress.com
There's a record of my treatment, my thoughts, my research into TNBC and that kind of thing. I also like the Triple Negative Breast Cancer Foundation in the US. They often post great stuff about treatment breakthroughs.
I think the most important thing to know about TNBC is that the 'shock horror' headlines are about grabbing attention and not informing people. We have at least a 75% survival rate and it's improving all the time! That's better than most other forms of cancer! It's just that other forms of BREAST cancer have really amazing survival rates. It's all about perspective.
Best wishes with your treatment and recovery. Meg
onemargie
Member
8 years ago
hi there tabna I was diagnosed last year aged 43 with tnbc took Left boob off to avoid the radiation had 4 rounds of AC then 4 of taxol. finished oct 16 then took the other boob off (my choice) Im happy to chat anytime just PM me. Sounds like you had a pretty shitty time, but be proud you have come out the other side. Im pretty sure I can safely say all of us have struggled with "the new normal:" I sure as shit have good luck with your results today keep us posted. we are here for you anytime, Ive just had a couple weeks break too from the forum due to work stuff but checked in again today. Margie :)
Tanba
Member
8 years ago
Chocolate is my down fall, My mum fed me chocky through my treatment! i even got a fredo on last day of 6 months of chemo!
Im greatful im still here, im greatful for my family & friends.
Im fighting to find my new normal.... i know its going to take time...
fairydust
Member
8 years ago
@Tanba Western sydney after reading what you have been through I would surprised if you were not anxious and depressed. I can only say that with time you will have a new normal. Things will improve. Some things always stay the same. I think you will learn how to manage your new life.
My life is also different but some things dont change ...I love eating chocolate...I love playing computer games...I love my family.....I love watching a good video....This is not a rant saying you should be grateful for things in your life...nooo...just saying you are still your unique wonderful you.
SoldierCrab
Member
8 years ago
Tanba I was 52 and grade 3 stage 3 I am here cancer free 5 years later :D
Tanba
Member
8 years ago
I was diagnosed at 47 & diagnosed with TNBC grade 3 stage 3.
primek
Member
8 years ago
Well at the end of the day it is your choice where you seek support. If I'm having a bad time I just don't check in for a bit and also avoid certain posts. My bc nurse suggested the same yet in crisis none of them were really able to support me like I could get here.

Sounds like you've had a torrid time. Glad you are receiving some support. Life does go on but by golly it takes time to reclaim your life and find a new normal. Hope yours improves soon. Kath x
Tanba
Member
8 years ago
Ive forgotten what my life was like before cancer diagnosis.
Annedipa
Member
8 years ago
Its been 2 years now since i finished treatment for tnbc. It's tough after all that whirlwind of treatment is over. I felt lost. Actually i didn't really reach out to many others during treatment it was afterwards i needed the support most. Its sounds like you have had a really tough time during treatment and there is a lot to deal with during and after. All i can say is that in time it does get easier... Talking to someone will help too..You are not alone. Big hugs xoxo