Life is Cruel !!!!
Hello to all of you lovely people
Well life really has been terrible for my family. I havent been on here as back on the 7th of June 2011 we recieved news that no parent wants to hear. My 3 year old son has a brain tumour. I was and am still gutted over it all.
He spent 10 weeks in Royal childrens hospital and now we are just home for a short break.
My precious boy is now in a wheel chair and is in the process of rehabilitation to learn how to walk etc and all life skills all over again.
The tumour got into his brain stem hence why he needs to learn to walk etc again. They couldnt get all of the tumour but they are hopeful in the MRI check up in October hoping they got enough that it will have cut the blood supply to it and if not he will need to start on chemo and maybe radiation.
It terrifies me that my bubba boy has to go through all this at a young age.
We have had him back and forth to Dr's since he was 9 months old when he had his first siezure and other ongoing issues and have been given wrong diagnosis all the time to what is wrong.
Had this of been picked up and not fobbed off all the time my baby wouldnt be going through all this struggle to do every day skills as he has to today.
In all of this going on YES I had big issues with my tissue expander and had to have emergency surgery as well in Brisbane. The stupid thing slipped from behind the muscle and was working its way out through my chest and ready to burst out of my chest. Wasnt a pretty sight. They think it may have been like this from earlier on and thats why I had so many on going issues !!! Like I kept telling them it just didnt seem right on the left side as the right was completely different and so much less pain.
I just wish life could be nice to my family and let us live a happy long life all together with no more of this crap happeing to us.
My little man had to have 3 lots of brain surgery so far and it scares me to bits if he needs more.
Can I ask you all to keep him in your thoughts and prayers for a full recovery and as it gets closer to his next lot of check ups I will ask you all again. He has alot of issues to deal with now due to surgery like his eye sight etc has now been effected and he has a hearing problem as well now. This all is just so hard to see when the poor little guy just doesnt even really understand why on earth he cant walk etc now after all the crap he had to deal with in hospital as well.
Ill try and keep you all updated more as I know more. I am doing well after my last surgery and hoping to have it put back in around 6 months time. If it doesnt work that time round I am asking for both expanders to be taken out and not bothering with it all.
So I am sorry for all you lovely ppl who have been sending replies and tryign to talk to me over teh past few months I really havent been ignoring you all I just havent had internet access to vent my furry to you all. But I will try to catch up on it all over the next few weeks we are here at home
Bless you all xoxoxo
