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SueRi's avatar
SueRi
Member
14 years ago

Latest CT

Hi all,

I hope everyone is as well as can be expected! I had a CT scan last week and 3 days later saw the oncologist for the results and things have started to increase 3mm but she did say not to panic it is all within range and its just the way that particular Dr reads the scans (very precise) and they all are slightly different.

It's ok for her to say don't panic but I still went home and the thoughts started to whirl around in my head - is it growing again? What if the next scan shows another 3mm increase? What happens then? I have been on the same treatment for 3 1/2 years so maybe things are starting to change and the cancer has adapted to the chemicals.

I know I am probably doing exactly what the onc told me not to do and it is probably all ok but its very hard not to have some of these thoughts every now and again.  When I do think the thoughts I come online and read the stories of others and it helps calm me down and I can then tell myself I am being silly which works for a little while!

I now have to take Caltrate as my calcium has dropped which isn't unusual apparently with ER and HER2+ but considering I started with high calcium readings I dont think its good.

I am on a bit of a downer at the moment so the scan results are effecting me more than they normally would, I am having trouble picking myself up and getting back to the positive mode.

Hopefully the weather will improve and then I will to. It feels better just to have written it all down and share my feelings here so thank you.

Hugs to all :)

2 Replies

  • Anonymous's avatar
    Anonymous
    Not applicable
    14 years ago

    Hi Sue, glad to hear you are feeling better. The ups and downs of secondaries are something I'm still getting used to...its a rollercoaster ride, especially when you have a cold or flu!

    Glad you made it to the Adelaide BC Friendship Group FB Page and you like it! Take care, Celeste ?

  • Anonymous's avatar
    Anonymous
    Not applicable
    14 years ago

    I know how you feel with getting scan results like that...it's so easy to go in to panic mode and think the worst! I guess all we can do is have faith in our treatment team, that they know what they're doing and will modify any treatment if the cancer becomes resistant.

    I also take Caltrate Plus for calcium increase (I am HER2+ and ER/PR+ too). I had high calcium levels to start with, but they dropped too so now I take CP to regulate my levels and protect my bones. Perhaps it is the treatment that causes this decrease in calcium, not necesarily the disease?

    I hope you are feeling a bit better since you got your results Sue. It can be a bit of a shock and send you into a tail-spin I know, but I'm sure your treatment team will keep a good eye on you. Don't forget to ask as many questions as you need to at  your next onc appointment too!

    By the way, have you visited the Adelaide Breast Cancer Friendship Group Facebook page? You can find us at:

    https://www.facebook.com/AdelaideBreastCancerFriendshipGroup

    Take care Sue, Celeste ?