Hi @StrongCoffee,
I've messaged you privately with my stats
See https://www.bcna.org.au/news/2020/02/oncotype-dx-again-rejected-for-medicare-subsidy/
“MSAC advised the Minister for Health that the evidence presented for Oncotype DX did not give the Committee confidence that the test would identify those patients who could safely avoid chemotherapy or those patients who would benefit from adding chemotherapy,”
However, my oncologist seemed to think the test is reliable, planned my treatment base on it, and said they would offer it to everyone if they could. (Please note they did not inform me of its existence - I was booked in for chemo - I only knew about it because my clever surgeon suggested it). It's certainly not a clear-cut, resounding vote of confidence, but I think I'm glad I skipped Chemo. Time will tell. It's been hard enough without chemo. Hats off and heartfelt best wishes to those who had/have to endure it and the side effect.
My oncologist seemed excellent in explaining options and so on. I'm a bit of a geek and read scientific articles for fun (well not really, but if I'm curious about anything in life I like to go straight to science). And I'm so surprised by the decision that the testing was not approved. The most recent, larger research definitely finds benefit in it for a specific group of women. It is definitely not of benefit nor should be offered to everyone, but you and I clearly fall into the 'perfect candidate for testing' category.
I had 20 minutes in the waiting room between seeing the surgeon and oncologist. Enough time to read up quickly on the specifics of why chemo was now on the table when it wasn't in any early discussions. I think that helped with talking to the Onc as I had a much better idea of questions to ask.
At the moment I'm strongly leaning towards getting the Oncotype DX done. I'm so grateful to be in a financial position that I can consider it (it will pay for itself if I avoid days off for chemo, as I have no leave left now) and saddened that other women in my circumstance have to forgo this testing.
Thanks again for your reply!
