The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor. 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results versus results from oncotype, etc tests","id":"message:193454","revisionNum":1,"repliesCount":29,"author":{"__ref":"User:user:23155"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"conversation":{"__ref":"Conversation:conversation:193454"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:193454"},"body@stripHtml({\"truncateLength\":200})":"Hi! First time stepping out from lurking and I just want to say thanks to everyone who has posted/commented anything on here. It has been so good to read about real (and Australian) BC experiences....","body@stringLength":"2624","rawBody":"Hi!
First time stepping out from lurking and I just want to say thanks to everyone who has posted/commented anything on here. It has been so good to read about real (and Australian) BC experiences. I promise I'm going to add some photos in the Choosing Reconstruction group soon to pay forward the support.
I'm 45yo and 2.5 weeks ago had a single mastectomy with immediate implant reconstruction plus sentinel node biopsy on my right side after a diagnosis of invasive ductal carcinoma. Due to the size, it was hoped my nodes would be clear - which they thankfully were, hence the immediate reconstruction. That took radiotherapy off the treatment table, as I'd hoped when opting for a mastectomy.
I had no symptoms of cancer. I had a small lump pop up, red and sore, earlier this year. It was nowhere near my cancer and has since been determined to have been a cyst. But in checking it out, they found a patch of microcalcifications. Nothing could be seen on ultrasound nor palpated. I had a sterotactic biopsy and mri prior to surgery.
Following surgery, I had my first appointment with the medical oncologist this week and, unexpectedly, the team had decided that I should be given the option of Chemo. So now my head is swimming with statistics and so on.
Specifics of my tumour is 35mm at its widest (which matched the MRI, which had it at 35mm x 25mm x 10mm - quite flat which I assume is why no lump could be felt). It is strongly ER and PR positive. I have a history of lean PCOS (a hormonal condition) and taking the pill, Yasmin - so some hormonal risk factors. It is HER2 negative. There were no other tumours etc found in the rest of the breast and as mentioned, nodes clear.
So hormone therapy is 100% first line of attack for keeping it away. However, due to my younger age (I don't feel that young, but in the breast clinic waiting room I could see that I am in the world of breast cancer) and the size of the tumour, they wanted to give me the option of TC chemo.
I'm definitely in the 'oncotype testing recommended' group as it is not clear cut that chemo will do that much.
So my question. My Ki67 was 9%. Which is low (just). I'd love to hear from anyone who had any form of oncotype (or the other similar ones) testing. How did your Ki67 compare to your final tests?
I'm thankfully in a position to be able to afford the test - it would cost less than days off for chemo now that I've used all my sick leave. Just concerned as so far this has all been a slow process and I don't want too many more delays.","kudosSumWeight":0,"postTime":"2021-05-07T21:44:11.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:193454_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":562},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"Hi!
First time stepping out from lurking and I just want to say thanks to everyone who has posted/commented anything on here. It has been so good to read about real (and Australian) BC experiences. I promise I'm going to add some photos in the Choosing Reconstruction group soon to pay forward the support.
I'm 45yo and 2.5 weeks ago had a single mastectomy with immediate implant reconstruction plus sentinel node biopsy on my right side after a diagnosis of invasive ductal carcinoma. Due to the size, it was hoped my nodes would be clear - which they thankfully were, hence the immediate reconstruction. That took radiotherapy off the treatment table, as I'd hoped when opting for a mastectomy.
I had no symptoms of cancer. I had a small lump pop up, red and sore, earlier this year. It was nowhere near my cancer and has since been determined to have been a cyst. But in checking it out, they found a patch of microcalcifications. Nothing could be seen on ultrasound nor palpated. I had a sterotactic biopsy and mri prior to surgery.
Following surgery, I had my first appointment with the medical oncologist this week and, unexpectedly, the team had decided that I should be given the option of Chemo. So now my head is swimming with statistics and so on.
Specifics of my tumour is 35mm at its widest (which matched the MRI, which had it at 35mm x 25mm x 10mm - quite flat which I assume is why no lump could be felt). It is strongly ER and PR positive. I have a history of lean PCOS (a hormonal condition) and taking the pill, Yasmin - so some hormonal risk factors. It is HER2 negative. There were no other tumours etc found in the rest of the breast and as mentioned, nodes clear.
So hormone therapy is 100% first line of attack for keeping it away. However, due to my younger age (I don't feel that young, but in the breast clinic waiting room I could see that I am in the world of breast cancer) and the size of the tumour, they wanted to give me the option of TC chemo.
I'm definitely in the 'oncotype testing recommended' group as it is not clear cut that chemo will do that much.
So my question. My Ki67 was 9%. Which is low (just). I'd love to hear from anyone who had any form of oncotype (or the other similar ones) testing. How did your Ki67 compare to your final tests?
I'm thankfully in a position to be able to afford the test - it would cost less than days off for chemo now that I've used all my sick leave. Just concerned as so far this has all been a slow process and I don't want too many more delays."},"Conversation:conversation:193454":{"__typename":"Conversation","id":"conversation:193454","solved":false,"topic":{"__ref":"ForumTopicMessage:message:193454"},"lastPostingActivityTime":"2022-09-11T15:02:04.000-07:00","lastPostTime":"2022-09-11T15:02:04.000-07:00","unreadReplyCount":29,"isSubscribed":false},"ModerationData:moderation_data:193454":{"__typename":"ModerationData","id":"moderation_data:193454","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:193454_1":{"__typename":"Revision","id":"revision:193454_1","lastEditTime":"2021-05-07T21:44:11.000-07:00"},"ForumReplyMessage:message:193458":{"__typename":"ForumReplyMessage","id":"message:193458","conversation":{"__ref":"Conversation:conversation:193454"},"author":{"__ref":"User:user:22343"},"revisionNum":1,"uid":193458,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"subject":"Re: Ki67 results versus results from oncotype, etc tests","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:193458"},"parent":{"__ref":"ForumTopicMessage:message:193454"},"body":"Hi @StrongCoffee, I've messaged you privately with my stats
See https://www.bcna.org.au/news/2020/02/oncotype-dx-again-rejected-for-medicare-subsidy/ “MSAC advised the Minister for Health that the evidence presented for Oncotype DX did not give the Committee confidence that the test would identify those patients who could safely avoid chemotherapy or those patients who would benefit from adding chemotherapy,”
However, my oncologist seemed to think the test is reliable, planned my treatment base on it, and said they would offer it to everyone if they could. (Please note they did not inform me of its existence - I was booked in for chemo - I only knew about it because my clever surgeon suggested it). It's certainly not a clear-cut, resounding vote of confidence, but I think I'm glad I skipped Chemo. Time will tell. It's been hard enough without chemo. Hats off and heartfelt best wishes to those who had/have to endure it and the side effect.","body@stringLength":"1014","rawBody":"Hi @StrongCoffee, I've messaged you privately with my stats
See https://www.bcna.org.au/news/2020/02/oncotype-dx-again-rejected-for-medicare-subsidy/ “MSAC advised the Minister for Health that the evidence presented for Oncotype DX did not give the Committee confidence that the test would identify those patients who could safely avoid chemotherapy or those patients who would benefit from adding chemotherapy,”
However, my oncologist seemed to think the test is reliable, planned my treatment base on it, and said they would offer it to everyone if they could. (Please note they did not inform me of its existence - I was booked in for chemo - I only knew about it because my clever surgeon suggested it). It's certainly not a clear-cut, resounding vote of confidence, but I think I'm glad I skipped Chemo. Time will tell. It's been hard enough without chemo. Hats off and heartfelt best wishes to those who had/have to endure it and the side effect.","kudosSumWeight":2,"repliesCount":0,"postTime":"2021-05-08T14:44:57.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:193458_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"CachedAsset:theme:customTheme1-1743643614981":{"__typename":"CachedAsset","id":"theme:customTheme1-1743643614981","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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