Forum Discussion

Christabel03's avatar
3 years ago

Kadcyla

Hi everyone, I am about to be switched from Herceptin only to Kadcyla for my last 8 rounds of active treatment. Just wondering if anyone is currently being treated with the same and how you are going? I know we are all different in how treatments affect us but I have been feeling pretty good on Herceptin alone after coming off Taxol Perjeta and Herceptin prior to surgery in late April and the thought of going backwards is just a little daunting at the moment :(
  • Hi there. I’m just about to commence Kadcyla too (after I finish radiation in three weeks time). I had 5 months of chemo and recently had a double mastectomy and reconstruction surgery. I was hoping to be on Herceptin alone for 12 months following surgery but the pathology results were less than ideal so the oncologist has suggested Kadcyla as a better option. So…. I can’t comment yet on the side effects of the Kadcyla, but everyone is assuring me it is considerably less taxing on the body. The oncologist biggest concern is ongoing nerve damage (as I had this with the Paclitaxel). Let us know how you get on. 
  • Hi @Miffy1975
    Thank you so much for responding, yes that is the same for me. My pathology had a tiny bit of residual so we are switching. I have heard it described as the chemo you have when you aren't having chemo or something along those lines so I am hoping it is easier to tolerate. I had the neuropathy with Taxol and we had to stop it two rounds earlier than planned because it was quite bad. My hands seem to be ok but my feet are not and I am a bit worried about it possibly getting worse. 
    Hoping the last of radiation goes smoothly, it feels amazing to finally finish that part, I just with the chemo wasn't ongoing but understand we do what we have to do for the best chance :)
  • I had kadcycla regime last  year , and it was definitely easier to tolerate than previous chemos . Hair not affected , so it grew back . From memory few digestive issues but nothing too hard to manage. 
  • Thank you @noosa_blue150 I had some digestive issues with AC as well so hopefully it won't be any more difficult than that was! Happy to hear it is easier to tolerate!